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Feeling more or less weak throughout the day
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Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 13/10/2022 at 16:47
Joined in 2020
1,280 comments posted | 17 in the Myasthenia Forum
10 of their responses were helpful to members
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Hi @lilyofthevalley ,
welcome to Carenity!
I'll tag some of the members here, so that they could share their experience with you, and answer your questions.
@Medsassi @Mg-mom @kerryab1 @NicoleS @Trishna @AndrewJackson @1234Mysthenia56 @michelle.oliver @MaggieMG @RebeccaCopson @Aurelie @Priscillajess @niamhjudgeoconnell @LiudmilaTerekhova @jonscfc @eirlysjenat @jannig @Sash1980 @Susie38 @Shazz2rs @KatieB @Babyoleg @swright570 @Mariarae
Take care,
Courtney
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Courtney_J, Community Manager, Carenity UK
Zaphod001
Zaphod001
Last activity on 03/09/2024 at 14:01
Joined in 2022
6 comments posted | 3 in the Myasthenia Forum
3 of their responses were helpful to members
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Welcome to MG! This is often a very confusing disease. Symptom variability is a central issue. In general terms we are better in the mornings and worse in the evenings. However if you’ve been very active in the morning it wouldn’t be unusual to feel fatigued in the afternoon. After a little rest (rest is key to managing fatigue) you will feel better hence sometimes you will feel better in the evening. The real key is knowing your limits.
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MaggieMG
@Courtney_J My symptoms came on rather suddenly, almost overnight. I thought at first I was having a stroke because you hear about the face drooping when that happens. Then I thought it was stress or fatigue but then when it didn't go away I knew it was something else. I went to my GP who told me to go to an eye doctor. Then there was some back and forth with the GP who finally ordered tests for me. It was awful waiting for the test results.
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Living with diseases affecting muscles, joints and-or skeleton
Life after a joint replacement: Share your experiences and advice!
Unregistered member
I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!
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MaggieMG
@Courtney_J My symptoms came on rather suddenly, almost overnight. I thought at first I was having a stroke because you hear about the face drooping when that happens. Then I thought it was stress or fatigue but then when it didn't go away I knew it was something else. I went to my GP who told me to go to an eye doctor. Then there was some back and forth with the GP who finally ordered tests for me. It was awful waiting for the test results.
See the best comment
Living with diseases affecting muscles, joints and-or skeleton
Life after a joint replacement: Share your experiences and advice!
Unregistered member
I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!
See the best comment
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lilyofthevalley
lilyofthevalley
Last activity on 03/07/2022 at 13:34
Joined in 2022
4 comments posted | 4 in the Myasthenia Forum
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Hello everyone, I am Lily, diagnosed with myasthenia recently, so new to all of this, and very scared of what awaits me in the future..
I still have lots of questions about this disease, that's why I decided to join a forum. So if someone could answer my questions, I would be very grateful!
I have noticed that I've been having good and bad days, but I guess this is quite normal. What I was wondering about was why it is that I sometimes feel great in the morning, then worse in the afternoon, and then again slightly better in the evening, or sometimes worse than in the afternoon. By better I mean less weak and tired. Has anyone experienced these "fluctuations"? Is it something that is normal for myashtenia?
I will be grateful for any help.
Lily