Home
Share
Forum
Myasthenia Forum
Living with myasthenia gravis
How did you handle your myasthenia gravis diagnosis?

Back

Patients Myasthenia

How did you handle your myasthenia gravis diagnosis?

15 views
0 support
2 comments

Courtney_J

Community manager

23/11/2021 at 17:48

Good advisor

Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020

1,280 comments posted | 17 in the Myasthenia Forum

10 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Hi everyone,

How are you doing? emoticon cute

How did you feel when you were diagnosed with MG? Were you given all the information you needed to understand it and its treatments? What about support?

Feel free to share your thoughts and experiences with us here!

Take care,
Courtney

All comments

MaggieMG

23/03/2022 at 10:10

MaggieMG

Last activity on 23/03/2022 at 10:02

Joined in 2022

5 comments posted | 5 in the Myasthenia Forum

1 of their responses was helpful to members

Rewards

Explorer

View profileView Add a friendAdd Write

@Courtney_J It was overwhelming for me. I'm still not sure today that I understand myasthenia and what's happening in my body. I don't know if it's hereditary or if I've brought it upon myself. I have so many questions and there's not much information out there beyond the NHS site or other health sites describing it.

How did you handle your myasthenia gravis diagnosis? https://www.carenity.co.uk/forum/myasthenia/living-with-myasthenia-gravis/how-did-you-handle-your-myasthenia-gravis-diagnosis-4425 2022-03-23 10:10:01

lilyofthevalley

17/05/2022 at 23:51

lilyofthevalley

Last activity on 03/07/2022 at 13:34

Joined in 2022

4 comments posted | 4 in the Myasthenia Forum

Rewards

Explorer

View profileView Add a friendAdd Write

I still can't get used to the thought of me being ill. It was so unexpected and so sudden. I used to do so much every day and now I have tp get used to another life, which is far from what I expected it to be like :/

Members are also commenting on...

MaggieMG

Edited on 18/11/2022 at 16:13

@Courtney_J My symptoms came on rather suddenly, almost overnight. I thought at first I was having a stroke because you hear about the face drooping when that happens. Then I thought it was stress or fatigue but then when it didn't go away I knew it was something else. I went to my GP who told me to go to an eye doctor. Then there was some back and forth with the GP who finally ordered tests for me. It was awful waiting for the test results.

See the best comment

Unregistered member

21/11/2016 at 15:19

I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!

See the best comment

MaggieMG

Edited on 18/11/2022 at 16:13

See the best comment

Unregistered member

21/11/2016 at 15:19

See the best comment

Articles to discover...

27/12/2023 | Testimonial

Dr. Vickie about Myasthenia Gravis: “When you push MG, it pushes back.”

10/08/2022 | Testimonial

Myasthenia gravis: "I still want to do everything I can for myself"!

18/07/2022 | Testimonial

Myasthenia gravis: "When I understood what I was dealing with, the remission began"

15/06/2022 | Testimonial

Myasthenia gravis: "I'm not ready to give up on my life because of my illness!"

20/09/2018 | News

Removing 'zombie' cells deters Alzheimer's in mice

18/05/2022 | Testimonial

Myasthenia gravis: "There are worse things in this world, this is what keeps me going."

17/12/2021 | News

Myasthenia gravis: Symptoms, diagnosis and similarities with other conditions

24/05/2022 | News

Myasthenia gravis: how does the disease progress?