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Myasthenia: How did the diagnosis affect your mental health?
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SAMANTHACARTER
SAMANTHACARTER
Last activity on 24/08/2023 at 22:29
Joined in 2022
2 comments posted | 2 in the Myasthenia Forum
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My Myasthenia Gravis has been okay The Legs are fine in most cases but they are slightly difficult always on the morning. I have no issue in the afternoon and night. Arms are always perfect, the eyes are also perfect. Sometimes the jaw makes it difficult to eat but this doesn't happen a lot and when it does soft food is fine. I have small things like water in the eyes which last a hour but again it is not an issue. All in all I get through the day and life is fine.
Steve Higgins
LizziB
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LizziB
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Last activity on 02/04/2024 at 00:46
Joined in 2022
280 comments posted | 2 in the Myasthenia Forum
19 of their responses were helpful to members
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Hi @SAMANTHACARTER thank you for your response. I'll tag a few more members to see if they would like to share their experiences.
@SusieDavies23 @juliemar @Huricane @Kopite301046 @Andy2702 @Gombos @KimberleyDavid @Shazcbf @Dottym @lenawest @MackemDH5 @uLYSSE007 @Maria.ellis2 @Ivanna @Susanjane @sarah71 @scotsgal57 @scotsgal42 @Alanb50 @Ellielay @kerryab1 @Trishna
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MaggieMG
@Courtney_J My symptoms came on rather suddenly, almost overnight. I thought at first I was having a stroke because you hear about the face drooping when that happens. Then I thought it was stress or fatigue but then when it didn't go away I knew it was something else. I went to my GP who told me to go to an eye doctor. Then there was some back and forth with the GP who finally ordered tests for me. It was awful waiting for the test results.
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Living with diseases affecting muscles, joints and-or skeleton
Life after a joint replacement: Share your experiences and advice!
Unregistered member
I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!
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MaggieMG
@Courtney_J My symptoms came on rather suddenly, almost overnight. I thought at first I was having a stroke because you hear about the face drooping when that happens. Then I thought it was stress or fatigue but then when it didn't go away I knew it was something else. I went to my GP who told me to go to an eye doctor. Then there was some back and forth with the GP who finally ordered tests for me. It was awful waiting for the test results.
See the best comment
Living with diseases affecting muscles, joints and-or skeleton
Life after a joint replacement: Share your experiences and advice!
Unregistered member
I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!
See the best comment
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Polina.K
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Polina.K
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Last activity on 11/08/2023 at 12:02
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89 comments posted | 1 in the Myasthenia Forum
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Hello everyone! I hope you are doing well!
I wanted to start this discussion today about Myasthenia and mental health. Many patients struggle with the diagnosis and worry about the future.
How was it for you? How do you feel now? Was it hard for you mentally to accept your diagnosis? How do you cope? Share here!
@RebeccaCopson @Zaphod001 @SAMANTHACARTER @MaggieMG @lilyofthevalley @NicoleS @Flower @Joanneedmonds @Redrose47 @Geruccio
Participate in the new survey about Myasthenia today!
Take care,
Polina from the Carenity team