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- What is your neuroendocrine tumour story? Let's share!
Patients Neuroendocrine tumour
What is your neuroendocrine tumour story? Let's share!
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Caesar
@Courtney_J Hi, I have mostly in my digestive system. I was repeatedly having diarrhoea, vomiting and pains in my stomach and I was losing a lot of weight, so I went in and after all the tests they found my tumours. I guess I'm lucky in that it hasn't really spread beyond my digestive tract, but I still have a lot of uncomfortable symptoms. It's not really operable so I'm on Sandostatin to try to control the hormones and diarrheoa.
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Courtney_J
Community managerGood advisor
How are you today?
I thought I would open this discussion so that we can get to know one another better!
So, what is your neuroendocrine tumour story?
When and how were you diagnosed? Where are your tumours located? Are they malignant or benign? What symptoms did you have that let you know something was wrong? What treatments have you tried? And how are you today?
@Sandradawn @AlisonN. @Kaydy1 @Kgleave @dianeking @Divinedom @EmmaW91 @Stantheman @Examiner1 @DS1964 @Km2020 @Bella2 @Hancock1 @aston-girl @symda86 @BM1384 @Maverixx @JMANAN @BrendaB @Domkat @MariaZerafa
Feel free to share your story, experiences or advice with us here!
Take care,
Courtney