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Patients Spasticity
Spasticity treatments - Opinions, experiences, advice
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nineteen_gale
Good advisor
I have Hypertension and am on treatment. I am also on Statins for high Cholesterol. I am currently being investigated for Paroxysmal Atrial Fibrillation (AF) I do get muscles spasms in my legs since I had my 4th and 5th Spinal surgeries. I put my muscle spasm due to being on Statins but the reason has not been confirmed. I had 14 episodes od AF last year over 4 months period. Then they suddenly stopped. Investigations revealed no known reason. This year I started having some isolated episodes of AF. I am now on the waiting list for Implantable Recordable loop. If any one has the loop implanted, I would love to hear from you.
Thank you
Nineteen_gale
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On grounds of my very ill health, I wish to terminate my membership with Carenity. Thank you all for all the support from everyone and wish you all good luckk
Margarita_k
Community managerGood advisor
Thank you for sharing, @nineteen_gale !
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Community Manager
Margarita_k
Community managerGood advisor
Don't forget about this discussion
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Community Manager
Pleasance
Good advisor
@Margarita_k @nineteen_gale I mentioned this in another discussion but I recommend botox for spasticity. My life has very much improved since I started this treatment and I don't have to go to the hospital as often anymore. It has really changed my life!
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Pleasance
nineteen_gale
Good advisor
@Pleasance
I do not suffer from Spasticity and am not on any treatment. I have had 5 Spinal surgeries and my Spine is fused from half way down my back to the end. I suffer from night cramps, but not spaticity. I have never heard of Botox treatment for Spasticity. i am glad your life has changed due to the treatment though.
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On grounds of my very ill health, I wish to terminate my membership with Carenity. Thank you all for all the support from everyone and wish you all good luckk
Courtney_J
Community managerGood advisor
Hello everyone,
How are you today? Have you seen this discussion?
What treatments have you tried for spasticity? Have they been effective? Have you had any side effects? Has one treatment worked better than another?
@Kadehenry16 @Dalrossi @ucollins2003 @brianbeecroft @Helencat @Barb71 @Zozime @doug61 @Justybusty @Drouthy @Keza2019 @Bilko1 @Katespear @Wanda15 @Jasperhodgkinson @Kipper501 @BCuthill1955
Feel free to share here!
Take care,
Courtney
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Courtney_J, Community Manager, Carenity UK
ladymary
Good advisor
@Courtney_J I've just been started on gabapentin and it's been helping. I'm interested in botox though, mainly just out of curiosity, not necessarily for me as I'm new to this. It's amazing that something that was developed for wrinkles can help people with MS or other conditions!
LindaBlacker
Good advisor
I had a bad relapse about six yrs ago. I was put on gabapentin eight times daily. I could stand up without falling down. Just slept then I went to the bathroom there I fell split my head open. I'd rather suffer a spasm than split my head open. Trying to come off them was a nightmare. Now I understand the word cold turkey not nice at all cheers everyone xx
Maougna
Hello , I'm interested to know if anyone has had serious side effects
after botox treatment . My wife had a stroke 15 years ago and her leg
has gradually become more spasticated . She had botox treatment and 10
days after the treatment she had profound muscular weakness all over .
It continues to this day , 4 weeks later . The doctor gave her lots of
tests and can find nothing wrong with her . She has no other symptoms at
all so our conclussion is that its a reaction to the botox treatment
but the specialist who gave her it thinks it isnt . Has anybody out
there had this reaction ?
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Yank34
AmbassadorGood advisor
@Maougna Wish I could help you but unfortunately I've never used botox for my MS spasticity. I'm keeping everything crossed that your wife will hopefully regain at least some of her muscle strength back. I'm? wondering if she would be able to access any physiotherapy to help with this situation? Sending my very bst wishes to you both. Ann x
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Ann
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Margarita_k
Community managerGood advisor
Wich is your treatment for spasticity?
Does it work? Do you experience side effects?
Don't forget to share your advice to help others or ask your questions to others.