Patients Nutrition / Metabolism / Endocrine glands
Difficult Diagnosis
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JosephineO
Community managerGood advisor
JosephineO
Community manager
Joined in 2018
@JJdrum Hello,
sorry for the delay in replying to this comment, have there been any advancements in your condition?
Have any other members experienced similar symptoms? Don't be afraid to share and help each other.
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Josephine, Community Manager
Tontnella
Tontnella
Joined in 2021
Hi I've had a red neck rash for 14months burning tried alsorts of cremes from Dr's to no avail.ive had 2 biopsy and patch testings all come back negative.nkw my face is also red and I'm flushing allday fir the last week
jieyang-en
jieyang-en
Joined in 2018
I have a lot of pinples on my cheek
JMouzac
JMouzac
Joined in 2021
My period are not regular
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I have been going to my GP for 3 years complaining about the same hormonal issues.
I have recently had horrific headaches and vision issues lasting over a month. I have kicked off and practically begged for help. Begrudgingly they are doing an MRI next week.
My optician is concerned something is pressing my optic nerve as it is swollen.
Since finding this out ive some tonnes of research and Acromegaly fits PERFECTLY.
why are my doctors so rubbish and unwilling to help?! Has anyone else struggled with a diagnosis?