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Best comment

Carenity members react daily to comments and responses within a discussion. The best comments are those that have received the most "Helpful Response" reactions. These comments are deemed useful by the community and are likely to be of service to the community at large.

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avatar 1Deygoothoan

avatar Ploutamaick8936

avatar 07Preekeeblel

It's not all in the head but the head can be a factor in the problem, whereby the physical problem causes stress, anxiety or even mental health issues, which in turn can have an adverse effect on the physical problem.

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avatar Stistoal0832

avatar Raipreecleeck51

avatar Wayweash8762

I take each day as it comes, try to have a focus for that day. Today is pretty good, but it gives me a nudge every now and again. H

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avatar Greecloustit71

avatar 1Deygoothoan

Good morning 😁

I've seen positive posts regarding copaxone, but it didn't fare well for me being on it. Was on it for 5 years, then tried on tysabri after I had new lesions on my spine (c3/c4) but I couldn't take more than the 1 dose because I'm JCV positive. So, back on copaxone I went for a few months before I had a status epilepticus event and was hospitalised for 27 days. I was given IV prednisolone, and I continued the copaxone injections until I got a call from my MS nurse telling me to stop my copaxone on X date, as my neuro had enough evidence to get me on ocrevus! It's a wonder drug! And now I'm looking at going on kesimpta later this year! Sure, I'll be doing self injections again, but at least it's only once monthly, apart from my starter doses, rather than 3 times a week 48 hours apart 😅

But, do what feels best in your heart and mind. You can always ask to change drugs if you don't feel its working enough 🫂 good luck ❤️

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avatar Blopreafrekosh7

avatar 7308Probregi

avatar Playchai3929

I think throughout life one suffers from all the stated anxieties but as one grows older, more experience, encouragement, support one can jump from one to another leaving some, or most of the old feelings behind tucked away but they can rear their ugly feelings at times, it's trying to find a suppressant method.

I personally feel secure this has taken many years to develop gaining life experiences, knowledge and confidence so if the demons return I can cope with them to stop any damage they would like to do. Everyone is different.

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avatar Stolang6

avatar Seychey734

avatar Wayweash8762

What child does not have issues these days, certainly mine have issues ranging from self harm, drug abuse, mental health issues, sexual abuse etc. etc. Getting them to talk about it has always been an issue and getting help from the NHS a lost cause. Is there anyone in the family close to you daughter that may be able to get her to talk as parents sometimes are seen as the enemy or they don't want you to know they have made a mistake. Sadly today children seem to be glued to the 'online experiencies' rather than making direct friends. We were very worried about my daughter as she had no direct local friends, her whole life based online. It was not until we had some chats with friends that this seem to be a trend.

If you can gain some hint of her 'problem' there are some excellent groups on Facebook that can inform and share real experience of diverse problems. I must admit I found out to late of such groups and how useful they are, virtually every subject/issue is covered. I just had the delight of adopting our granddaughter through an SGO, the worst experience of our lives. Both parents have mental health problems, both tried to commit suicide, self harm etc. during the process. Social Services were terrible, lying in court, appalling dishonesty and no help anywhere. We won our case despite objections from Social Services the judge saw through their lies. But the point is, I found the Facebook groups with lots of similar experiencies of people all over the country, all to late but we were not alone. So my point is, try to identify her area of issues and look for a group with similar experiencies.

I had to section my son for a few days earlier this year but the NHS system is broken and discharging them quickly seems to be their intention. They now have him on various drugs and increasing strength, the Mother of our grandchild with serious mental issues where I supervise her on any contact, as directed by the courts. I have used various phycologists and therapists over many years and recent a therapist with our grandchild to check out our concerns, she was fantastic, no issues found thankfully. So there are various options for sourcing them online locally, therapists cheaper than phycologists. For the recent therapist, last year it was £55 a session and years ago phycologists triple or a lot more.

You may find it may be bullying of somekind and not more serious problems, talking is the best way to get a hint of the issue. Good luck!

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avatar Wayweash8762

avatar Vuronayploush99

To be quite honest, I have experienced a low libido. Thankfully my husband understands and his libido is low as well--he in his early 70's and me in my mid 60's. Neither of us have a problem with the lack of sexual intimacy...we make up for it with other physical touch--hugging, cuddling, kissing. etc. I have broached the topic with a few close friends and shockingly, they are in the same boat.

My advise would be, don't listen to what other people are doing behind closed doors...do what works for you and your partner--you're not competing with anyone about anything. No two couples are alike, and what is natural for some, may not be natural for others. In my opinion, its only a problem if one of the two of you isn't comfortable with the way things are. If this becomes the case, then speak to your doctor to find out what help they can offer.

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avatar Polina.K

avatar Wayweash8762

avatar Bridrayck265

@7308Probregi Yes I switched over to the electric overblankets for nearly tenty years ago and never was cold again. My wife uses her side just to warm her up but I enjoy the full overnight heat and improved my sleep no end. So cheap to use and I have one at my static caravan, very useful this Easter being so cold!

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avatar Shopliblock13

avatar Graflatais475

avatar Vuronayploush99

I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask! 

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avatar 07Staitemai

avatar Loudriplu7309

avatar 1Deygoothoan

Go to the nearest Chemist and seek help, they can do a lot for you and contact your GP in an emergency. It is better than ending up in A&E!

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avatar Gegrayfroonot956

avatar Wayweash8762

avatar Raipreecleeck51

@LizziB I see it from a different perspective. He's not the only person with cancer, and by sharing it of course gets top VIP treatment from the Government, the public and private medical professionals. Many people are still on a horrific waiting list for diagnosis alone but because of the royalty and his title he is immediately treated. My husband has both skin and prostate cancer and deals with the government hospitals like the normal public. He has waited 4 years alone for radiotherapy treatment which he only started yesterday. Hormonal injections, chemotherapy, waiting for hospital and doctor's appointments, cancellation of appointments and more have had a massive impact on both of us, including all of the side effects that have come with the treatment so far given. I am so grateful to the NHS for all they have done for him so far.

I don't agree with the way it takes over the news, media and more when other people with cancer are just left alone.

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Hela Ammar

Pharmacist, Hela is a data scientist at Carenity. Using her scientific and medical knowledge, she supports various project managers to carry out real-life studies conducted with members of the community. A graduate of the Faculty of Pharmacy of Monastir in Tunisia, Hela holds a PharmD. After an internship as a market analyst at the Ministry of Public Health in Tunisia and an internship as an assistant diabetology product manager, she decided to complete a specialized master's degree in Pharmaceutical and Biotechnology Management at ESCP Business School. Hela joined Carenity in May 2022 as a data scientist after completing her end-of-study internship at Novartis as a junior product manager working with solutions for severe asthma. Through her various experiences in hospitals and pharmacies, Hela has had the opportunity to work closely with patients and has developed a deep knowledge of chronic diseases. 

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What our members have to say

These are quotes and opinions submitted by Carenity members. Here patients, their loved ones, and those interested in their health share their experiences and opinions about the Carenity forum and what they have learned from talking to other patients.

"I was diagnosed with RRMS when I was young and it has now progressed to SPMS. The transition has been difficult for me. Carenity gives me a chance to find support and advice."

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Julia
Multiple sclerosis, Patient
55 years old

"Carenity has really helped me open up about my AS. I can always ask other patients for advice on my medications and treatments and I don't feel alone anymore."

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Kevin
Ankylosing spondylitis, Patient
64 years old

"I didn't know much about diabetes when I was first diagnosed, but I'm trying to learn as much as possible to stay on top of things. It's nice to meet other diabetics and share our thoughts and questions."

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Damian
Type 2 diabetes, Patient
64 years old

"I've gone through a lumpectomy followed by radiotherapy, which went well for me. I am happy to share advice that might make life just a little easier for other women with breast cancer!"

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Gigi
Breast cancer, Patient
62 years old

"My mother has MS and I've grown up seeing how it affects her. It's so painful to not be able to change it. I'm happy to have found ths site, so I can give advice and support to anyone with MS."

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Ashleigh
Multiple sclerosis, Relative
33 years old

"I've been in and out of depression for years and just need to talk about it with people who understand! It's great to have a place like Carenity to turn to where I can talk to other people who understand what it's like battling mental illness."

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Mark
Depression, Patient
44 years old