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Discover the experiences of our members on this page. You can filter these testimonials by disease using the search bar above. Finally, by registering, you will be able to comment on these stories and share yours to help other members!

Featured testimonials

Hidradenitis suppurativa: “You’ll live with this disease your whole life, but make it your strength.”

Hidradenitis Suppurativa

Hidradenitis suppurativa: “You’ll live with this disease your whole life, but make it your strength.”

3 Jun 2026 • 1 Like

In this powerful and inspiring testimony, 28-year-old Elisa shares her journey living with hidradenitis suppurativa (HS) and ankylosing spondylitis.Passionate about hairstyling, alternative music,...

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@lesmal, Carenity Ambassador: Living with epilepsy, leading with empathy

@lesmal, Carenity Ambassador: Living with epilepsy, leading with empathy

25 Mar 2026 • 1 Like • 1 comment

What does it mean to be a Carenity Ambassador? For Lesley (@lesmal), it means showing up with empathy, kindness, and a real desire to help others feel less alone.Living with epilepsy for more than 50...

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The latest testimonials published

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3 Jun 2026

Hidradenitis suppurativa: “You’ll live with this disease your whole life, but make it your strength.”

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25 Mar 2026

@lesmal, Carenity Ambassador: Living with epilepsy, leading with empathy

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1 Dec 2025

HIV-positive since childhood: Sophie-Elena’s extraordinary journey

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29 Oct 2025

“I’ll be bipolar until the day I’m buried, but I’m in recovery”: Paula-Rose’s story of strength and hope

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17 Sept 2025

MS: “It's deeply linked to stress, so it's important to take care of your emotions.”

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3 Sept 2025

Treatment-resistant depression: "I relapse systematically at the same time every year."

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20 Aug 2025

Crohn’s disease: “I went through a total proctocolectomy… and it’s not over yet.”

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13 Aug 2025

Fibromyalgia: “Misunderstanding and scepticism are the hardest things to deal with in this invisible illness.”

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30 May 2025

Multiple sclerosis: “I’m strict with my rest because without it, I can’t function at all.”

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2 May 2025

Autism and disability: "At the core of me, there is only light and love."

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26 Mar 2025

Primary Ciliary Dyskinesia (PCD): “I've gotten better at saying ‘no, I'm actually not fine and here's why.’”

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19 Feb 2025

Crohn’s disease: “Resilience is about getting up each day and choosing to keep fighting, even when it feels impossible.”

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