The ambassadors

The Carenity Team of Ambassadors consists of members with various chronic conditions who have shown kindness and willingness to help others with a piece of advice or a word of support, and who are there to help us make Carenity forum even more useful.

Our Ambassadors have been Carenity members for a while now and they know perfectly well how to post a comment, create a discussion or send a message, and will be able to guide you around the site if you get lost 😉

So don't be afraid to reach out to them.

However, don't forget that they are patients, just like you, so all the questions that require medical opinion should be addressed to healthcare professionals.

Yank34

Chronic pain,Muscles / Skeleton / Joints,Multiple sclerosis,Spasticity

Although only formally diagnosed with MS in late 2013, believe my MS initially presented as trigeminal neuralgia when I was about 27 yrs old (approx. 1978) but because I believe I had RRMS (Relapsing Remitting) the various symptoms, intermittently experienced over the years, never thought there was any "connection". It really only began to became problematic in about 2006 when I started experiencing extended periods of time (months) with debilitating fatigue, ever increasing "accidents" I.e. falling down stairs, slipping, memory problems, muscle cramping etc but attributed these down to "doing too much, working too hard", getting older......". Although I know believe I have SPMS (Secondary Progressive) - have been experiencing daily symptoms for approx last 18 months but feel so fortunate and grateful independent although with various limitations. Wish I didn't have this but know things could always be worse. Happy to meet and support others with this.

I’ve only just TODAY (12/08/22) noticed that I may NOT have previously completed this form? Although I have NO idea when I may have written the above - have NOW had MS for 44+ years. I’ve had NO 24/7 period of time without MS symptoms but conversely still believe I continue having extended “flares”, lasting between 12-20 months which I often only recognise sometime after they actually started and likewise sometime after they ‘resolve’.

mrchipps

Prostate cancer,Ulcerative colitis,Seborrhoeic dermatitis,AMD,Coronary heart disease,Deafness,Spondylosis

i am living with several health problems, but i do not let them take over my life. i have several hobbies, such as singing in choirs, playing the piano, writing poetry and voluntary work, for an N.H.S trust mental health trust i use it to help me improve my quality of life. i love my life and do what i can to help others in need. i recently bought a defibrilater for my local community. in memory of my angel wife in heaven

robjmckinney

Diabetes (Type 2),Disc hernia,Back pain,Obesity,Head and neck Cancer

I am a diabetic 2 sufferer who has just survived neck cancer with three prolapsed discs.

lacemaker

Osteoarthritis,Thyroid dysfunction,Anal fistula,Rheumatoid arthritis,Radiation proctitis,Short bowel syndrome,Secondary Lymphedema,Lichen planus,Lymphodema

Pippadog

Diabetes (Type 2),AMD,Obesity,Rheumatoid arthritis,Overactive bladder syndrome

Hi I am Brenda I have Rheumatoid Athritis

lesmal

Aneurysm,Osteoarthritis,Chronic pain,Epilepsy,Chronic gastritis,Hyperlipidemia,Arterial hypertension,Pulmonary arterial hypertension,Hypothyroidism,Chronic kidney disease,Osteopenia,Osteoporosis,Gastroesophageal reflux disease,Pulmonary Hypertension

I have had epilepsy for 52 years and will not give up on the hope for a cure. I advocate, educate and do voluntary admin work for people with/affected by epilepsy and cancer, ie Marie Curie UK.