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- What is your ADPKD story? Let's share!
Patients Autosomal dominant polycystic kidney disease
What is your ADPKD story? Let's share!
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CarrieG
CarrieG
Last activity on 07/08/2020 at 18:02
Joined in 2020
2 comments posted | 2 in the Autosomal dominant polycystic kidney disease Forum
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@Courtney_J Hi, I just joined the site, so sorry if I'm a bit new to this! I was diagnosed about 10 years ago now after having weeks of bladder infections and pain in my back and side that ended with a trip to A&E thinking I was having a heart attack! After all the scans and tests they came back with PKD. I had never heard of it, but we think my father may have had it as he passed of kidney failure many years ago. Right now I'm mostly being treated for my high blood pressure and occasional kidney stones or bladder infections. I'm grateful to have found this group to get to talk to others about it!
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Courtney_J
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Courtney_J
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Last activity on 13/10/2022 at 16:47
Joined in 2020
1,280 comments posted | 2 in the Autosomal dominant polycystic kidney disease Forum
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Hello everyone,
How are you today?![emoticon cute](https://member.carenity.co.uk/static/themes-v3/default/javascripts/vendor/tinymce/plugins/emoticons/img/cute.png)
I thought I would open this discussion to help us get to know one another in our ADPKD community!
So, what is your ADPKD story? How and when were you diagnosed with autosomal dominant polycystic kidney disease? Did you have any symptoms or complications before you were diagnosed? Have you tried any treatments for it? How are you doing today?
Feel free to share your story, experiences and advice with us here, we're all here to help one another!
@Jennilee @Maggiehm @Caroline1651 @Roni12 @spikey mikey
Take care,
Courtney