Patients Endometriosis

How long did it take to get an endometriosis diagnosis?

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Somya.P

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31/01/2026 at 18:00

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Somya.P

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Last activity on 29/01/2026 at 13:34

Joined in 2023

921 comments posted | 8 in the Endometriosis Forum

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Hi everyone,

Endometriosis is often called an “invisible” condition, but for many, the pain and fatigue are anything but. What makes things even harder is how long it can take to get a proper diagnosis. Some wait years. Others are misdiagnosed again and again.

How long did it take before you were officially diagnosed?
Did doctors listen to your symptoms early on?
What advice would you give someone still looking for answers?

@Corinnesmith31 @Maggs62 @becky1970 @Nispa1 @pixieb @snow.white @tinkerjack1912 @twecolynne @Christina1958 @mcintam @TitchK @sangor10 @meme23 @Maryuk86 @fionaneli @Luckyvibe @Coco382014 @Sunshine56 @Iceicebaby @queenie85 @nikki77 @Mblyth @Louise84 @Tracy-mack @slousa @esw048 @Traceyaa @Spoonie_51 @Sarabox @Gina40 @Zoe0505 @Dayannapr @bendenning @topi34 @HVID55 @CandiceT @Pennylein64 @imanusardi @Jempin @Emily7798 @JackieVR @marhan20 @Claire @Kimbad1990

Your story could help someone feel less alone, and more prepared to push for answers.

Somya from the Carenity team 🌼

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topi34

31/01/2026 at 18:21

topi34

Last activity on 31/01/2026 at 18:24

Joined in 2019

2 comments posted | 1 in the Endometriosis Forum

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It took well over twelve years for my diagnosis- with going backwards and forwards to the GP more times than I can remember- being told - it`s normal, it`s IBS, there`s nothing wrong; until around twelve years later after all of that and they did discover the truth of Endometriosis - Stage 4.

How long did it take to get an endometriosis diagnosis? https://www.carenity.co.uk/forum/endometriosis/living-with-endometriosis/how-long-did-it-take-to-get-an-endometriosis-diagnosis-5981 2026-01-31 18:21:35

tinkerjack1912

31/01/2026 at 18:23

tinkerjack1912

Last activity on 31/01/2026 at 18:23

Joined in 2015

8 comments posted | 2 in the Endometriosis Forum

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Mine was quite quick as I had a molar pregnancy in the January and was already under the gyne team and then had my first Laparoscopy in the October diagnosed then .

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Tinkerjack

How long did it take to get an endometriosis diagnosis?

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