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Thyroid dysfunction: What’s your journey been like?
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Thomas s
Hi everyone
Ive recently become a member on 16/08/2015. I also was diagnosed with an over active thyroid and had radio-iodine treatment to correct this. in my case I was also given a suppresent drug to kill the thyroid off which when left unmonitored left me really ill. I could not explain how I felt to my family, I was in a black hole with a big black cloud above me and could not see a way out. I went from a person who everyone went to for help and advice to a person who did not want to know anything bad in the world, who was frightened to go out alone, not sleeping, severe nightmares and frightened of what the future might hold. All because I was a person who was given a thyroid suppresent drug to treat a thyroid that did not exist. I could go on no longer and as my next revue was not for 6 months I paid a visit to my family doctor and tests revealed that I should never have been left taking this medication without supervision and he immediately prescribed Thyroxine 150mg and contacted my consultant. I feel a lot better now and my quality of life is greatly improved. I said nothing to anyone and kept my symptoms hidden for so long because I felt ashamed and a weak person. I have to be the strong one as our daughter has been disabled since birth (27) and the future is always a worry for us, I also come from a large family who have always come to me for help and advice and there were times when all I have wanted to do was crawl into a hole, but stupidly I hid this and helped them with there problems. I have also had cancer of the mouth and my left kidney has failed but is back on the road to recovery, I have also had chronic back and leg problems also a lot of fatigue some of which were linked to an over active throid but there is always someone worse off than you. Anyway....yes I also cannot stop putting on weight and my thick head of hair is also on the thin side....so this is a common characteristic I can presume. I hope to hear from other people with similar symptoms.
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Thomas s
Hi everyone
Ive recently become a member on 16/08/2015. I also was diagnosed with an over active thyroid and had radio-iodine treatment to correct this. in my case I was also given a suppresent drug to kill the thyroid off which when left unmonitored left me really ill. I could not explain how I felt to my family, I was in a black hole with a big black cloud above me and could not see a way out. I went from a person who everyone went to for help and advice to a person who did not want to know anything bad in the world, who was frightened to go out alone, not sleeping, severe nightmares and frightened of what the future might hold. All because I was a person who was given a thyroid suppresent drug to treat a thyroid that did not exist. I could go on no longer and as my next revue was not for 6 months I paid a visit to my family doctor and tests revealed that I should never have been left taking this medication without supervision and he immediately prescribed Thyroxine 150mg and contacted my consultant. I feel a lot better now and my quality of life is greatly improved. I said nothing to anyone and kept my symptoms hidden for so long because I felt ashamed and a weak person. I have to be the strong one as our daughter has been disabled since birth (27) and the future is always a worry for us, I also come from a large family who have always come to me for help and advice and there were times when all I have wanted to do was crawl into a hole, but stupidly I hid this and helped them with there problems. I have also had cancer of the mouth and my left kidney has failed but is back on the road to recovery, I have also had chronic back and leg problems also a lot of fatigue some of which were linked to an over active throid but there is always someone worse off than you. Anyway....yes I also cannot stop putting on weight and my thick head of hair is also on the thin side....so this is a common characteristic I can presume. I hope to hear from other people with similar symptoms.
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Somya.P
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Somya.P
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Last activity on 12/06/2025 at 18:17
Joined in 2023
638 comments posted | 2 in the Thyroid dysfunction Forum
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Hello everyone, how are you doing today?
Living with thyroid dysfunction, whether it's hypothyroidism, hyperthyroidism, Hashimoto’s, Graves’, or another condition, can deeply impact daily life. The symptoms might start off subtly: unexplained fatigue, weight changes, mood swings, hair loss, or brain fog. But for many, it takes years to get properly diagnosed, and even longer to find the right treatment plan.
Everyone’s experience is different, some people find stability with medication, while others are still trying to get their levels right or deal with ongoing symptoms despite “normal” labs. And sometimes, it’s not just about the body, thyroid disorders can affect how we feel emotionally and mentally too.
👉 What type of thyroid condition do you live with?
👉 How long did it take for you to get diagnosed?
👉 What’s helped you manage your symptoms or feel more like yourself again?
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We’d love to hear your story, your tips, or even just what you're going through right now 💬
Take care!
Somya from the Carenity team 🌼