Travelling with ankylosing spondylitis: Set off with peace of mind thanks to these practical tips!

What is ankylosing spondylitis?

A chronic inflammatory condition

Ankylosing spondylitis (AS) is a chronic inflammatory disease primarily affecting the spine and sacroiliac joints. It causes persistent lower back pain, often more intense at night or upon waking, accompanied by morning stiffness. Over time, inflammation can lead to a loss of flexibility, and in some cases, fusion of the vertebrae, limiting movement and affecting quality of life.

In addition to back pain, AS may cause severe fatigue, peripheral joint pain (hips, knees, heels), and in some cases, extra-articular symptoms such as inflammation in the eyes or intestines. The condition progresses in flares, with periods of remission in between.

Travelling with ankylosing spondylitis: a real challenge to take on

For people with AS, planning a trip requires thoughtful preparation. Long journeys can increase pain and stiffness. Adjusting treatment, managing fatigue, and ensuring a comfortable environment all become key considerations. Travelling is absolutely possible, with the right preparation beforehand.

How to travel with peace of mind when living with ankylosing spondylitis: Essential tips

Before you go: Plan carefully

The first step before any trip is to consult your doctor. They can adjust your treatment if needed, write a medical certificate, and provide a prescription in case you’re travelling abroad. It’s also wise to ask for a doctor’s letter explaining your condition and treatments, especially if you use specific devices or injectable medications.

Medication transport must be carefully organized. Some treatments require refrigeration; others may be subject to restrictions at airports. Keep medications in their original packaging and carry them in your hand luggage along with the relevant prescription.

It’s also important to take out suitable travel insurance and choose a destination with a favorable climate, accessible infrastructure, and ideally, nearby healthcare services. Planning rest periods during your trip schedule will help avoid overtaxing your body.

What to pack when travelling with ankylosing spondylitis

Packing mindfully can give you peace of mind while away. In addition to your medications, bring a second copy of your prescription just in case. Accessories like a lumbar cushion, support belt, or neck pillow can improve comfort during travel. A small first-aid kit with painkillers, anti-inflammatory creams, and other essentials is always useful.

Be sure to include a copy of your medical records, your doctor’s contact details, and, of course, comfortable, loose-fitting clothes suited to the climate of your destination.

The journey itself: How to minimize pain and fatigue

Travelling by car, train, or plane: Adjust your posture

Regardless of the journey length, sitting for too long can worsen AS-related pain. If you’re driving, plan frequent breaks to stretch and walk for a few minutes. Using a lumbar cushion or back support can also relieve pressure on your spine.

On the train, stand up regularly to walk up and down the aisles to prevent stiffness. On planes, try to book a seat with extra legroom, ideally by the aisle for easier movement. Compression socks, staying hydrated, and doing simple leg and foot exercises are also recommended to reduce circulation issues.

Keep moving to avoid getting stuck

Even while travelling, staying active is important when possible. Simple movements, like gentle neck rotations, discreet stretches, or muscle contractions, can help prevent stiffness and reduce pain. Once you arrive, engaging in gentle physical activity like walking, swimming, or adapted yoga helps maintain mobility and minimize stiffness.

Once you’re there: How to enjoy your holiday with ankylosing spondylitis

Listen to your body and pace yourself

Vacations should be about enjoyment, not racing against the clock. It’s essential to listen to your body and slow down when necessary. It’s better to spread gentle activities throughout the day than to squeeze everything into one outing. Alternating between activity and rest periods helps you manage your available energy better. Keeping a regular sleep and meal schedule also contributes to overall well-being.

Managing the unexpected in case of a flare-up

Even with good preparation, unexpected issues can arise. Before leaving, it’s helpful to locate nearby medical facilities at your destination. Keeping a copy of your medical records close at hand makes emergency care easier. In case of an inflammatory flare-up or sudden pain, follow your usual measures: rescue treatment, rest, local heat or cold therapy, whichever helps you most.

In summary: Travelling with ankylosing spondylitis is entirely possible!

Ankylosing spondylitis doesn’t have to stop you from travelling, it just requires some forward planning. Medical preparation, transport choices, comfort management, and pacing yourself are all key to enjoying your trip. By listening to your body and adapting your travel plans to your needs, you can set off with peace of mind and return with great memories.

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