CDKL5 syndrome Forum
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Rare genetic disease caused by the mutation of the CDKL5 gene and characterised by early-onset drug-resistant epileptic seizures, significant neurodevelopmental impairment and severe delay in the development of motor skills
Ongoing discussions - Child Illnesses
Current topics:
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- Helping children with learning disorders thrive
Hello Members! Today is World Dyslexia Day (10 October), so let’s open up a discussion to talk about learning disorders such as: dyslexia (a learning disorder that affects reading comprehension), d
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- What does your child suffer from?
It is never easy being the parent of a sick child and many parents can feel hopeless and desperate when they can't help their child. What does your child suffer from? Please share your stories to gain
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- Helping kids cope with the fear of medical treatment
For children, the fear and pain of medical treatments can be traumatic. So a number of tech companies have come up with ways to help. Vaccinations save lives, but many children fear the needle. So one
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