flag en
flag fr flag es flag de flag it flag us
logo carenity white
  • Home
  • Share
  • Get informed
  • Give my opinion
  • About
  • Magazine
  • Testimonials
  • Join
  • Log in
Logo Carenity
  • Share
  • Get informed
  • Give my opinion
  1. Home
  2. Share
  3. Forum
  4. Cold Agglutinin Disease Forum
  5. Living with a rare disease
  6. How were you diagnosed with a rare disease?
 Back

Patients Cold Agglutinin Disease

Living with a rare disease

How were you diagnosed with a rare disease?

  •  8 views
  •  0 support
  •  1 comment

avatar Courtney_J

Courtney_J

Community manager
01/11/2020 at 00:00

Hello everyone,

How are you doing? emoticon cute

What were the first symptoms you experienced? How were you diagnosed? 
@Hyakkimaru‍ @Jo1977‍ @paul1798‍ @Alisondenise‍ @Courtjack1‍ @gerdec2007‍ @Bazzagood‍ @MariaKadhagen‍ @RIPAAK47‍ @darcie01‍ @gerry_4‍ @BobDowning‍ @pinkykaz ‍ @Ktaberner1‍ @lexi12‍ @callywake‍ @Celticheart‍ @skolemilla‍ 

Feel free to share your fears, doubts and thoughts here! We're all here to help and support one another!

Take care,
Courtney

Medical fact sheet

Medical fact sheet

Cold Agglutinin Disease

Give your opinion

Survey

How were you diagnosed?

All comments

avatar unhappy

unhappy

06/06/2022 at 12:50

it took 6and half years before I found out what was the matter with me,and that was with the London Hospital which was 30-july 20221 my life has been hell I have fallen over over many times,crack bones,I am in a lot of pain all the time,get very tied,friends and family keep away,they don't understand they can be cutting in there remarks I feel very alone,I could on and on but I think it would drive everyone round the bend. Helen


How were you diagnosed with a rare disease? https://www.carenity.co.uk/forum/cold-agglutinin-disease/living-with-a-rare-disease/how-were-you-diagnosed-with-a-rare-disease-3885 2022-06-06 12:50:02

Give your opinion

Survey

How were you diagnosed?

Articles to discover...

Monkeypox: everything there is to know!

12/08/2022 | News

Monkeypox: everything there is to know!

How to spot hidden sugars in food?

08/08/2022 | Nutrition

How to spot hidden sugars in food?

Medications you should never mix with alcohol!

06/08/2022 | News

Medications you should never mix with alcohol!

What conditions can be triggered by stress?

01/08/2022 | News

What conditions can be triggered by stress?

Alcohol and hot weather: what are the risks?

28/07/2022 | Advice

Alcohol and hot weather: what are the risks?

Different types of psychotherapy: choosing the one that works best for you!

25/07/2022 | Advice

Different types of psychotherapy: choosing the one that works best for you!

What are the health risks of lack of sleep?

24/06/2022 | Advice

What are the health risks of lack of sleep?

Diets: the yo-yo effect and its consequences for your heart health

11/06/2022 | News

Diets: the yo-yo effect and its consequences for your heart health

icon cross

Does this topic interest you?

Join the 500 000 patients registered on our platform, get information on your condition or on that of your family member, and discuss it with the community

Join Join Join Join Join

It’s free and confidential

Join Log in

About

  • Who are we?
  • The Carenity team
  • The Science and Ethics Committee
  • Contributors
  • Carenity in the news
  • Certifications and awards
  • Data For Good
  • Our scientific publications
  • Discover our studies
  • Editorial policy
  • Code of conduct
  • Our commitments
  • Legal notice
  • Terms of use
  • Cookies management
  • Contact
  • For our partners

Quick access

  • Health magazine
  • Search a forum
  • Learn about a condition
  • See medication reviews
  • List of forums (A-Z)
  • List of condition info sheets (A-Z)
  • List of medication fact sheets (A-Z)
  • Language flag fr flag de flag es flag it flag us

The www.carenity.co.uk website does not constitute or replace professional medical advice.