Patients Cold Agglutinin Disease

How were you diagnosed with a rare disease?

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Courtney_J

Community manager

01/11/2020 at 00:00

Hello everyone,

How are you doing? emoticon cute

What were the first symptoms you experienced? How were you diagnosed?
@Hyakkimaru‍ @Jo1977‍ @paul1798‍ @Alisondenise‍ @Courtjack1‍ @gerdec2007‍ @Bazzagood‍ @MariaKadhagen‍ @RIPAAK47‍ @darcie01‍ @gerry_4‍ @BobDowning‍ @pinkykaz ‍ @Ktaberner1‍ @lexi12‍ @callywake‍ @Celticheart‍ @skolemilla‍

Feel free to share your fears, doubts and thoughts here! We're all here to help and support one another!

Take care,
Courtney

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unhappy

06/06/2022 at 12:50

it took 6and half years before I found out what was the matter with me,and that was with the London Hospital which was 30-july 20221 my life has been hell I have fallen over over many times,crack bones,I am in a lot of pain all the time,get very tied,friends and family keep away,they don't understand they can be cutting in there remarks I feel very alone,I could on and on but I think it would drive everyone round the bend. Helen

How were you diagnosed with a rare disease? https://www.carenity.co.uk/forum/cold-agglutinin-disease/living-with-a-rare-disease/how-were-you-diagnosed-with-a-rare-disease-3885 2022-06-06 12:50:02

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