Patients Cold Agglutinin Disease
Living with Usher syndrome: Share your experience!
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Hello, am new here.
I have usher syndrome and have been registered blind for quite a few years. Also have glaucoma which has closed down one eye and affected central vision in other eye. I manage quite well day to day and keep as busy as possible.
Are there any other usher people on here ?
Hello @malc66, thank you for opening this discussion and welcome to Carenity! Our Usher syndrome community is still growing, so we don't have a dedicated community space quite yet.
@faroes feel free to come discuss with malc66 here!
For our other members, are any of you familiar with Usher syndrome? If so, what do you know about it?
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Courtney_J, Community Manager, Carenity UK
@Courtney_J @malc66 Hi, sorry I missed this notification some how! It's actually my brother that has Usher, he has type 2.
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