What is your fibromyalgia story? Let's share!


Patients Fibromyalgia

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Posted on

Hello everyone, 

How are you feeling today? 

I thought I would open this discussion so we can all get to know one another better! emoticon cute

So, what is your fibromyalgia story? How and when were you diagnosed? Did it take a while to come to a diagnosis, or were you even misdiagnosed? What symptoms were you having prior to your diagnosis? How are you doing today? 

Feel free to introduce yourself and share your story here! 

Take care,

Beginning of the discussion - 11/09/2020

What is your fibromyalgia story? Let's share!

Posted on

@Courtney_J It took AGES for me to be diagnosed. Several years ago I started having lower back pain which I thought was caused by long hours in a bad desk chair. My GP told me to take ibuprofen and take up yoga, which didn't work, clearly. Within the next year or so I started having pain in other areas like my knees, ankles and shoulders. I could barely move the computer mouse at work. The pain really started getting to me and I could barely do the household chores, let alone get to the office. My GP finally referred me to a pain specialist who finally diagnosed  fibro. I had to take a few months of illness leave from work until the medicines kicked in a bit and to figure out how to reorganise my life. It was a frustrating period, but now I'm doing a bit better. I hope I chat with more of you on here, it will be nice to talk to others who know what it's like to have fibro! xx

What is your fibromyalgia story? Let's share!

Posted on

@MariaB It also took a long time for me to get a diagnosis. I couldn't get my GP to really listen to me, so I went through a few years of NSAIDS, and then I was misdiagnoses with chronic fatigue and rheumatoid arthritis. I managed to get in to see a specialist like you who was able to identify fibro pretty quickly. It's funny how our stories are similar!

What is your fibromyalgia story? Let's share!

Posted on

I am 70 years old and was diagnosed in 2018. Prior  to diagnosis I had been in pain for well over a year. I live in Glastonbury and was having to go to Sussex regularly as my beloved father  was dying. It took a year for him to do so, and a year for me to flare. I'm an ex dancer, middle distance runner and now an ex swimmer. I started to get widespread pain when I got back from Sussex one time and went down with the virus from hell!  From then on it got worse and worse. I was still swimming well, but was finding tge walk to the  bus at 7am very difficult  as i became so stiff. Eventually  things came to a head when i came out if a coffee shop after swimming and there seemed a large bang in my body and a pain in my leg, so bad i thought id been shot. I got on a bus and went straight to the doctors. They saw me straight  away and after a very long time was told he thought it was fibromyalgia. I had no idea what that was.  Everything was then set in motion. I had to wait  for the consultant to come to our cottage hospital.  I saw two in the end after a 4 month wait. 

I was given the diagnosis in full in August 2018. Both consultants were lovely but were a bit put out because I refused to take the drug cocktail. The interesting aspect was that when she went over my past histopathology it seemed I had been diagnosed with fibrositis back in 1966. Being I was at school and running dancing etc things just hurt. Later also as a ballet dancer, middle distance runner and swimmer they all hurt. But when I look back she was right, it just never raised its ugly head much until Dad was dying. I asked if I would go in remission. She said no, not at my age or after a whole year of flaring. However I now manage it the best I can. I live with my partner of over 40 years. He finds it difficult as he knew me before all this and he's getting old too,

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