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Patients Multiple sclerosis

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Carenity Member • Community manager
Posted on
Good advisor

Copaxone is one of the treatments for MS, which is aimed at preventing the relapses and slowing down the evolution of the disease and has not very significant side effects. Even though it is not a very strong drug, it is often prescribed for people with RRMS.

Have you had any experience with copaxone? What did you think about its effectiveness, side effects, etc?

If you have any advice for those who are just starting or are going to start on this medication, don't hesitate to give your opinion!

 

Beginning of the discussion - 4/24/18

Copaxone for relapsing MS
Carenity Member
Posted on

I started Copaxone in June 2006 -3 years after diagnosis (4 years after onset).My relapses were all lfe affecting and invariably affected my legs.

Since going on Copaxone Ive only had 1 bad relapse and that was at a time when I was both physically and emotionally burnt out ( Id been supporting my best friend in the latter stages of cancer throughout the year as well as working -she died 4 weeks before the relapse). Ive never made it to 5 years relapse free -but Ive got pretty close.  

Recent relapses have been minor and 'sensory' only (2 in 3 years) so for me Copaxone is a winner

BUT.....

Site reactions are a major issue for some people and whereas many people's reactions calm down over time, mine haven't and the leg ones usually leave me in pain when walking.  Transferring to the 3 times a week dose instead of the every day protocol means I do get a couple of days when its not so much of an issue now.  The list of side effects in the packaging is now longer than when I started and I do have other side effects. But the bottom line is Im still independent, Ive gone back to work full time and am pretty much fully mobile, though stairs and getting into standing position require effort.

 Copaxone may not have the stats behind it that some of the newer drugs have in the percentage of reducing relapses etc but I would definitely recommend it as a first step on the DMD ladder because if it works the side effects are less serious than the ones for the newer drugs.  Copaxone also does not require you to need regular blood tests and also you do not develop antibodies which can stop it working, as can happen with some of the other older DMDs.

Copaxone for relapsing MS
Carenity Member • Community manager
Posted on
Good advisor

Thank you very much for sharing your experience and your opinion with us, @Hidden username‍ !

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