Patients Multiple sclerosis
Ocrevus vs. Tysabri: Which to choose for MS?
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After seeing my ms nurse I've been given the choice between these 2 treatments.
I was just wondering if anyone had any experience of either and is one better ,more tolerated,easier to have than the other?
I've been given all the literature to read through but I'm undecided.
Hello @Greeny, thank you for opening this discussion. I've moved it to our "Treatments for multiple sclerosis" group for more visibility. Let me tag some other members who can possibly share with you.
Hi everyone, for those of you who have been on Ocrevus or Tysabri, or even both, can you share your experiences? Was or is either medication effective for your MS? Have or did you have any side effects?
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Courtney_J, Community Manager, Carenity UK
Hello Greeny, I have had 1 dose of tysabri, but couldn't continue further because I have JC virus, and thus an increased risk of PML. It didn't appear to be working for me for that month that it would have lasted. However, I have now moved onto ocrevus, and it is so far so brilliant! I started it in July, due to have my 1st proper dose on 3rd December, and the only downside of it is that the bloods are required every 6 months, and the positive effects are now wearing off, unfortunately. But, I haven't had any relapses since starting, I am able to walk more without my stick, and the staff that do the infusions are so welcoming and nice!
Wishing you all the best, Charlotte.
Thanks for your reply.
Its nice to know other people's opinion.
I think my consultant would rather I have the ocrevus..and to be honest it's probably going to fit in better with home life and kids as the infusions are less often.
I'm glad it's suiting you and hope you continue to do ok with it.
Not to worry, I try my best 😁
I would listen to your consultant, and if he/she would prefer you to be on ocrevus, then go for it. It would definitely be a better fit for home life and childcare!
I'm glad as well, and so is my partner, my mum, and everyone else that knows that I'm on it. I'm hoping that I'll be fine on it for as long as there's a cure 🤞🤗
You take care too! Keep me updated if you need.
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