Ocrevus vs. Tysabri: Which to choose for MS?

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Patients Multiple sclerosis

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Posted on

After seeing my ms nurse I've been given the choice between these 2 treatments.

I was just wondering if anyone had any experience of either and is one better ,more tolerated,easier to have than the other?

I've been given all the literature to read through but I'm undecided.

Thanks

Beginning of the discussion - 25/10/2021

Ocrevus vs. Tysabri: Which to choose for MS?

• Community manager
Posted on

Hello @Greeny‍, thank you for opening this discussion. I've moved it to our "Treatments for multiple sclerosis" group for more visibility. emoticon cute Let me tag some other members who can possibly share with you.

Hi everyone, for those of you who have been on Ocrevus or Tysabri, or even both, can you share your experiences? Was or is either medication effective for your MS? Have or did you have any side effects? 
@Narcisse@waggywoo1@Luke3341@Iannoh@nazza91@Caz1979@billyjon@Priya1988@Rach115@NicolaS@JoLynn@Leicester-City-Fan@Franran3@niamhobroin2021@Byojaxs@alexab@AnneLH@Trumpmercy‍ 

Feel free to share with us here!

Take care,
Courtney

 

Ocrevus vs. Tysabri: Which to choose for MS?


Posted on

Hello Greeny, I have had 1 dose of tysabri, but couldn't continue further because I have JC virus, and thus an increased risk of PML. It didn't appear to be working for me for that month that it would have lasted. However, I have now moved onto ocrevus, and it is so far so brilliant! I started it in July, due to have my 1st proper dose on 3rd December, and the only downside of it is that the bloods are required every 6 months, and the positive effects are now wearing off, unfortunately. But, I haven't had any relapses since starting, I am able to walk more without my stick, and the staff that do the infusions are so welcoming and nice!

Wishing you all the best, Charlotte.

Ocrevus vs. Tysabri: Which to choose for MS?


Posted on

@cwright17 

Hi Charlotte,

Thanks for your reply.

Its nice to know other people's opinion.

I think my consultant would rather I have the ocrevus..and to be honest it's probably going to fit in better with home life and kids as  the infusions are less often.

I'm glad it's suiting you and hope you continue to do ok with it.

Take care 

Ocrevus vs. Tysabri: Which to choose for MS?


Posted on

Hi Greeny,

Not to worry, I try my best 😁

I would listen to your consultant, and if he/she would prefer you to be on ocrevus, then go for it. It would definitely be a better fit for home life and childcare!

I'm glad as well, and so is my partner, my mum, and everyone else that knows that I'm on it. I'm hoping that I'll be fine on it for as long as there's a cure 🤞🤗

You take care too! Keep me updated if you need.

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