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Living with ulcerative colitis

Recently diagnosed: Any advice?

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avatar JamesRelph

JamesRelph

09/12/2020 at 14:12

avatar JamesRelph

JamesRelph

Last activity on 19/12/2020 at 14:05

Joined in 2020


1 comment posted | 1 in the Living with ulcerative colitis group


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Hi All,

I am new to this all and very confused with the diagnosis. 

A week ago today I was in hospital after experiencing sharp stabbing pains in my stomach - I passed out of the toilet but never actually went. I did manage to go half hour later. 

I tried to sleep it off but my stomach was so uncomfortable and around 4am I had the urge to go to toilet and I passed only blood. 

I went to hospital and they sent me home saying it was a stomach bug. I got home and the blood kept on coming out every 20 minutes roughly so I was advised to go back in. 

I was in hospital for 2 nights where they carried out a CT scan that showed my bowels were inflammed/ infected. They also carried out a biospy where they place a camera from behind to see inside. 

I was discharged with what I take as a premiliminary diagnosis of UC as I have only received pain medicine to deal with my symptoms such as painkillers, anti sickness and laxitive. I have to wait 4 weeks for a refreal to gastroenterology and find out the results of the samples from the biopsy and the footage.

I am clueless what to do now? I have barely eaten since getting home as feel naseous and my chest up feels really acidy. I feel really fatigue and sleeping alot of the time and losing weight when I really dont need to. I have passed a bowel movement in over a week as I dont think my body is getting enough food. I must admit I am really scared of what is going to happen when I do. 

Does anyone have any advice? I am a male and 32. Usually fit and healthy and run over 50 miles a week minimum. 

Thanks in advance. 

James 

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avatar Kulukee

Kulukee

19/12/2020 at 01:51

avatar Kulukee

Kulukee

Last activity on 06/02/2021 at 11:53

Joined in 2020


1 comment posted | 1 in the Living with ulcerative colitis group


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Hi James sorry to hear you going through your illness. When I had my colonoscopy after I had been pooping blood for a few months I could see visually on the screen that there was mucous puss bleeding in my bowel there and then I was diagnosed with UC. Did they confirm it with you too? I have to say though it was a slippery slope for me from that day on but u may respond to medication better if it is UC you will be a guinea pig of various meds till they find what meds suit u. In my experience u can have irritable bowel along side bowel disease I know it real sucks if u have both so the diet will have to play apart for you too. Rice is good for me on a flare up, pasta veg grown under ground , sour dough bread only keep low fibre , coconut water is good , dyoralite to replace your salts, bovril! Bovril does wonders and u will have fatigue if you do have UC u will prob start to find u will take longer to recover from a run too. Sorry for waffling but I have 7 years of tips! 


Recently diagnosed: Any advice? https://www.carenity.co.uk/forum/other-discussions/living-with-ulcerative-colitis/diagnosed-with-ulcerative-colitis-3909 2020-12-19 01:51:33

avatar Courtney_J

Courtney_J

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16/02/2021 at 14:39

Good advisor

avatar Courtney_J

Courtney_J

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Last activity on 13/10/2022 at 16:47

Joined in 2020


1,280 comments posted | 21 in the Living with ulcerative colitis group

10 of their responses were helpful to members


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Hello all,

How are you today? Have you seen this recent discussion? emoticon cute

 What symptoms were you having before you were diagnosed? How did you handle your diagnosis? What steps did you take to take control of your situation after you were diagnosed? Can you share any advice with @JamesRelph‍?
@MicaUC‍ @Colekala‍ @EricHantson‍ @Sameer‍ @Chewy62‍ @Amandajane2020‍ @oonagh‍ @Lesleyj25‍ @Anil12‍ @Jonah8‍ @Jonesx‍ @Helen1‍ @Lainey1‍ @raymondofox‍ @Amyjaynee95‍ @Nadir_669‍ @kellie‍ @Gwhudd‍ @g.hods‍ 

Feel free to share any thoughts or advice, we're all here to support one another!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK


Recently diagnosed: Any advice? https://www.carenity.co.uk/forum/other-discussions/living-with-ulcerative-colitis/diagnosed-with-ulcerative-colitis-3909 2021-02-16 14:39:22

avatar Chewy62

Chewy62

16/02/2021 at 15:45

avatar Chewy62

Chewy62

Last activity on 07/04/2021 at 11:37

Joined in 2020


2 comments posted | 1 in the Living with ulcerative colitis group


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Hi I was diagnosed 6 years ago with ibd ...IBS...  UC..symptoms  upon diagnosis  were frequent  toilet visits red blood in poop and tissue  often tummy cramps  nausea  tiredness  this all came on over a period  of around three  months till I had all the cameras  which confirmed  this awful disease  was then given steroid suppositories  had to use for 6 weeks not nice at all also was given a tablet called asacol which helped tremendously  took around 2/3months  till went into remission which lasted a few years just a few minor  flare ups after this .then the trouble  started my meds changed  to octasa they were ok at first but now I.m into my 4th month  of a flare up and with this covid thing my specialist  appointments keep being cancelled  and I'm  becoming  really worried  spoke with my gp who  on looking up my poop tests which I took in November where  active and not been followed  up he contacted  my specialist  and managed  to get me an appointment  all be it via phone on 25th this month here's  hoping 


Recently diagnosed: Any advice? https://www.carenity.co.uk/forum/other-discussions/living-with-ulcerative-colitis/diagnosed-with-ulcerative-colitis-3909 2021-02-16 15:45:49

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