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Trigeminal neuralgia
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charlesdickens99
I see a very common theme here with GP's and Dr's.
I have to say I am not impressed with the competency of many of our Dr's. In fact, it is pretty poor. Looks like most re on the NHS gravy train and want to as little as possible
baheersayed
This sounds painful
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baheersayed
Very painful.
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Silverlady
Good advisor
Thank you for this I think I need to,look into it x
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Trudij
Good advisor
Hi
I found out in December 2016 that an ear and sinus pain was an neuralgia pain called trigeminal neuralgia. I'd never heard of it before.
It's a rare disease or condition without a cure. It seemed I was alone and the ENT dr just dismissed me . Saying there was nothing he could do.
Well it might be rare but I'm not alone. I found a large group of sufferers online on Facebook in the UK and another worldwide on fb too. As well as a UK charity called tna.
It can be treated with epileptic drugs like carbamazepine drugs and many others too. If your very lucky operations on the trapped nerve can be tried as well. But if like me and no reason for the condition is found . Drug treatment is the only way forward.
Many ms sufferers get this condition too. Because the sheath that protect the nerve slowly disappear. Then the pain starts .
I hope any one out there suffering with any type of facial pain. Whether its eye cheek sinus ear teeth nose lips jaw etc can get the help straight away unlike me.
Xx