Meet Ophélie, our Data Protection Officer

Published 25 Mar 2019 • By Louise Bollecker

As a social network for patients with chronic diseases and their families, Carenity has access to data about the health of its members. Security, confidentiality and respect for this data is a priority for us: this is the role played by Ophélie, the Data Protection Officer at Carenity.

Meet Ophélie, our Data Protection Officer

Hello Ophélie! In practice, what is the role of a Data Protection Officer?

Hello ! In concrete terms, the role of a Data Protection Officer (DPO) is to provide information and advice in order to comply with the provisions of the General Data Protection Regulations (GDR). I am also in contact with the CNIL (Commission nationale de l'informatique et des libertés) if necessary and at the disposal of members to answer their questions on data protection.

What does this mean on a daily basis? What is your job role and projects?

On a daily basis, I am called upon to set up new projects such as certain evolutions of the platform. I work in collaboration with the Carenity team (and in particular Jérémy, IT Security Manager) to ensure that members' data is protected, that we do not collect data in an unjustified manner, that information on the processing of their data is transparent and accessible to all members... For example, the information is available here regarding the use of the platform.

I also ensure that each time a new survey is put online, people wishing to respond have all the information they need about the objectives of the survey or how the results will be used. I also take care of answering members' questions when they contact me.

What data is collected at registration, and what is it used for?

At registration, members must provide an email address, their date of birth and indicate an illness (as a patient or relative, or as an interested party or patient association representative).

The email address is useful to us to validate the Carenity account and contact the member if necessary. The date of birth allows us to ensure that the person who wishes to register is of full age. In addition, since the platform is organized around communities, adding a disease allows us to offer more relevant content, information and forums to our members, which is Carenity's mission.

Who has access to member data?

Not all members of the Carenity team have access to all member data. For example, the Community Managers and I will have access to data that allows members to use the platform to help them if necessary. On the other hand, the team in charge of analysing the survey results will only have access to the survey responses, etc.

What data is shared with third parties? Under what conditions?

In general, we do not share any personal data of members with third parties.

In particular, when we share survey results, it is in an aggregate form, i.e. it is impossible to identify a member individually. When we work with researchers or physicians on research topics, we sometimes transmit a member's responses in a non-aggregated manner (a series of responses that are known to have been provided by a single person). In this case, this point is always explicitly stated on the introductory page where we present the survey and you can choose not to participate.

Where is the data of Carenity members hosted?

The data is hosted in France by our OVH host, to guarantee maximum security in accordance with European Union standards.

How long have you been at Carenity?

I have been with Carenity since 2016. I also hold the position of Senior Data Analyst. My role is to convey as accurately as possible the opinions and difficulties of members to our partners, in order to constantly improve the services provided to patients.

Any last words?

If you have any questions, please do not hesitate to contact me at dpo@carenity.com. I will answer you as soon as possible!


avatar Louise Bollecker

Author: Louise Bollecker, Community Manager France

Community Manager of Carenity in France, Louise is also editor-in-chief of the Health Magazine to provide articles, videos and testimonials that focus on patients' experiences and making their voices heard. With a... >> Learn more


lesmal • Ambassador
on 26/03/2019

Dear Opheile,

Thank you for explaining the process involved, and thank you for all you do on the site to ensure all data protection is done securely and dealt with in the proper manner.

I am very grateful to know our data is safe and have never had any queries in this regard.

Should I ever encounter a problem, please be assured I will make contact through the correct channels! 

I love the new format, layout and design and as an Ambassador will continue to do my best to interact, give advice, advocate and educate others on any topics I can. 

All the best!  

Unregistered member
on 07/04/2019

Dear Ophelie

I trust that this message finds you in good health?

The subject of 'Data Protection' is very relevant today with so much personal information on-line. We all put our trust in the sites that we visit to implement the Data Protection guidelines and protect our personal data and hence our lives.

Ophelie. May I on behalf of my other Ambassadors. Wish you every success in your role, protecting us form the 'nasties' that lurk online? Any contravention of the DPA will be reported to you to 'work your magic' on ASAP to confine any breach?

Take Care Dear Friend,                                                                                                                                                                              Warmest Regards,                                                                                                                                                                                       Richard.(Westbury UK)

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