Biotherapy and COVID-19: Has the virus had an impact on your treatment?

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Patients Chancroid

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Topic of the discussion


• Community manager
Posted on

Hello everyone

How are you doing?

Biotherapies (Enbrel, Humira, Remicade, Simponi...) are treatments that lead to a decline in immune responses (immunosuppressants).
Patients who use these treatments are therefore at a higher risk of complications due to the COVID-19 infection.

Are you currently undergoing biotherapy and have an autoimmune disease (ankylosing spondylitis, rheumatoid arthritis, chronic inflammatory bowel disease, psoriasis...)? Then this discussion is for you!

Please don't hesitate to ask any questions you may have, or to share information on biotherapies in the context of the pandemic!

If you have been infected with COVID-19, do not hesitate to share your story!

Our survey now closed, but you can check out the results right here: COVID-19 & Biologics: Patients Share Their Experience

If you haven't seen already, here is our comprehensive article on the coronavirus and chronic illness where you will find a lot of useful information: Coronavirus and Chronic Illness

Take care,

Courtney

Beginning of the discussion - 07/04/2020

Biotherapy and COVID-19: Has the virus had an impact on your treatment?

• Ambassador
Posted on
Good advisor

Hi Ya'll

I'm taking Cosentyx  (biologic's) for my AS. I haven't had any reaction at all, not even in the beginning of my treatment. I take a real concoction of drugs (20 different drugs per day) more at weekends. 

Maybe my biologic has given me some immunity from the Covid-19 virus? I don't know.  Time will tell?

Sorry it's short but my eye's are rather dry.

STAY SAFE

Richard

Biotherapy and COVID-19: Has the virus had an impact on your treatment?

• Community manager
Posted on

 Hello members, I hope you don't mind me tagging you! How are you doing during this difficult time? Have your treatments been affected at all by the pandemic? Feel free to share here!

@Jennymh@ahighplace@Walgreens@Samsung12@Aideen61@Susiemaxwell@earthspirit@Halfpint70@DonnaWorton@flutterby40@rangersman69@Happychick46@Clarity@HelenaCreaby@Janeywom@Tamara26‍ 

Take care,

Courtney

Biotherapy and COVID-19: Has the virus had an impact on your treatment?


Posted on

Hello I take methotrexate and Cosentyx injections, has anyone stopped taking the meds out of fear of this virus, I'm just so scared I miss my family I just want to be safe 

Angeline x

Biotherapy and COVID-19: Has the virus had an impact on your treatment?


Posted on

Hi  ,

I will be having my infusion tomorrow morning ,i have colitis which is very active at the moment and a few other conditions that i take meds for . I am pleased i do not have to go to the hospital building for treatment, but to a clinic nearby . I am today full of inflamation and am having kidney problems, so feel under the weather . I would like to take this opportunity to send my good wishes to everyone on this site ,if i could id like to give you all a gentle hug.Each one of you is unique so "viva la difference ", please take care and stay safe . Karen Plymouth UK. xxxx

Biotherapy and COVID-19: Has the virus had an impact on your treatment?

• Ambassador
Posted on
Good advisor

Hi Angeline

I too take methotrexate and Cosentyx injections, I am on a total of 40+ tablets a day and min 6 injections. I am in the seriously at risk of death group so I haven't been out since the 18 th March. 

To stay safe I would suggest that you follow the governments guidelines and self isolate, you don't want to go anywhere you are possibly in danger of infection, the risk is bad enough as it is. If we go out to soon and the disease kick's off again then it will be harder to overcome?

My advise is to STAY SAFE and think of yourself and how you feel?

Best Wishes  Richard  

Biotherapy and COVID-19: Has the virus had an impact on your treatment?


Posted on

I am on Methotrexate and Rituximab infusions. I am starting to flare but scared to contact rheumatology to arrange my infusion. I am getting bloods checked today at GPs, so if CRP is very elevated may need to. 

Biotherapy and COVID-19: Has the virus had an impact on your treatment?

• Community manager
Posted on

@Susiemaxwell Hello Susiemaxwell, thank you for commenting! Let us know how your test goes, we'll be thinking of you! Wishing you the best.

Take care,

Courtney

Biotherapy and COVID-19: Has the virus had an impact on your treatment?

• Ambassador
Posted on
Good advisor

Susiemaxwell

Susie      PLEASE STAY CALM.

Wait until you have had your test work back and see how your CRP is behaving? If the values are in the low 'teens' or below then you've not much to worry about? A few times when I have had a 'flare up' they have gone up to 47 even 50, my GP wasn't particularly worried, the reaction was 'get over the flare up and things will settle down. I've been on methotrexate for many years, providing you keep them (CRP) under control there is not a lot else you can do.

Don't be scared to contact rheumatology to arrange you're infusion. See how your bloods come back and have a chat with your GP and see what they advise? I am pretty sure that you will be as safe there as anywhere else Susie.

Take Care my dear friend.

STAY SAFE

Richard

Biotherapy and COVID-19: Has the virus had an impact on your treatment?


Posted on

Thank you Richard