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Living with COPD

Cancellation of LVR due to neglect

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avatar Michaela50

Michaela50

18/07/2019 at 13:50

avatar Michaela50

Michaela50

Last activity on 01/10/2019 at 10:00

Joined in 2016


1 comment posted | 1 in the Living with COPD group


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I have been keeping myself well for the last 16 months and was accepted for lung volume reduction surgery  at the Royal Brompton Hospital, I have just came out of hospital after having a mild attack but ended up having to stay at  my local hospital for 6 weeks as I was given an overdose of of blood thinners in my stomach which caused a large hematoma Plus a clot on the left lung. I tried on numerous occasions how to tell a Pacific doctor I was suffering from pain and very bad discomfort but was told basically it was all in the mind until will.i.am passed out going to the bathroom only then I was told I have the hematoma I was also told by the same doctor that I should come straight off of steroids which I've been on for 6 weeks previously. In a nutshell I have now now got to work myself up for the surgery again as they will not do the procedure on the right lung knowing I had a large hematoma and a blood clot on the left lung I feel very let down and wondered if anybody else has suffered the same problems that I have I'm really a loss at the moment. 😭

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avatar exit

Unregistered member

29/07/2019 at 11:28

@Michaela50‍  Hello,

I am very sorry to hear about your predicament, it is dreadful and completely disheartening when we feel let down by our doctors. I am sorry i have no advice for you, just to say that my husband suffered similarly with being diagnosed too many steroids without being told the potential side effects.

I feel our doctors are overworked on the NHS and it causes a lack of care because they can't concentrate fully on their patients. Have you gone back recently?


Cancellation of LVR due to neglect https://www.carenity.co.uk/forum/other-discussions/living-with-copd/cancellation-of-lvr-due-to-neglect-2896 2019-07-29 11:28:11

avatar JosephineO

JosephineO

Community manager
29/07/2019 at 11:42

Good advisor

avatar JosephineO

JosephineO

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Last activity on 15/07/2024 at 09:21

Joined in 2018


989 comments posted | 38 in the Living with COPD group

6 of their responses were helpful to members


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@Miranda @Michaela50 

Thank you for sharing.

Have other members, or their family/friend, experienced this? Do you have any advice for the member?

@keen123adam‍ @kenjamesh‍ @TrudyE‍ @tomfoster‍ @Geordie49‍ @Dinnes46‍ @brianhl‍ @Nikki70‍ @PaulThomson‍ @Lorrainzee‍ @brianstevens‍ @Mikest‍ @Bapjaws‍ @TLewis‍ @Magsmc29‍ @christineskilton‍ @MickyR‍ @scorpios‍ @Freda1998‍ @garymcreed1966‍ @Lindayoung‍ @Dustylady‍ @peterm‍ @Baz35135‍ @Cathy67‍ @mariejo‍ @blackpoolb‍ 

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Josephine, Community Manager


Cancellation of LVR due to neglect https://www.carenity.co.uk/forum/other-discussions/living-with-copd/cancellation-of-lvr-due-to-neglect-2896 2019-07-29 11:42:01

avatar Benjam23

Benjam23

31/07/2019 at 15:37

Good advisor

avatar Benjam23

Benjam23

Last activity on 09/07/2020 at 10:24

Joined in 2014


11 comments posted | 3 in the Living with COPD group


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@Michaela50 This is sad news indeed, I am very sorry to hear about this :( How are things now?

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Benjam23


Cancellation of LVR due to neglect https://www.carenity.co.uk/forum/other-discussions/living-with-copd/cancellation-of-lvr-due-to-neglect-2896 2019-07-31 15:37:13

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