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Patients Idiopathic inflammatory myopathy
How did you handle your IIM diagnosis?
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IrisIIM
@Courtney_J It was all really shocking and unexpected for me. It's been overwhelming, there's really not much information out there about it beyond the very medical sites and I'm not really sure what the way forward is with this disease. If my doctor wasn't familiar with it, how am I supposed to be?
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Courtney_J
Community managerGood advisor
Hi everyone,
How are you doing?
How did you feel when you were diagnosed with IIM? Were you given all the information you needed to understand it and its treatments? What about support?
Feel free to share your thoughts and experiences with us here!
Take care,
Courtney