What is your MS story? Let's share!

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Courtney_J

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13/07/2020 at 18:49

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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Hello everyone,

How are you feeling today? emoticon cute

I thought I would open this discussion so we can all get to know one another better!

So, what is your MS story? How and when were you diagnosed? Which type of MS do you have? How are you doing today? What medications or treatments have you tried? Do you have any advice to share with someone newly diagnosed with MS?
@Miss.MS‍ @Rolley5‍ @VickiD‍ @Emma123‍ @Emma1024‍ @shunt999‍ @Zombieapplebaby‍ @madsheep71‍ @Tilly68‍ @Bern50‍ @Meggie333‍ @182614‍ @Diva360‍ @Charlie12345‍ @Harps10‍ @Jemgavlaa‍ @Fl33tw00d‍ @thembrough‍ @EmilieH‍ @Kareema‍

Feel free to introduce yourself and share your story here!

Take care,
Courtney

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LindaBlacker

21/01/2021 at 10:04

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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Lynseyg how true I've had ms forty years myself. My motto is use it or loose it. Never give up on ms we are stronger than we think. Hope is all we live for

What is your MS story? Let's share! https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2021-01-21 10:04:29

Dianeh

22/01/2021 at 15:51

Dianeh

Last activity on 02/04/2024 at 19:54

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Hi I have had MS most of my life MRI in2015 says it all find it hard to walk now but I won’t give up. 3 children has helped I was fine when I was pregnant and about a year after that but now 56 going down hill forget things and don’t right anymore, I have lost contact with everyone. But I can still smile Diane

What is your MS story? Let's share! https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2021-01-22 15:51:43

LindaBlacker

23/01/2021 at 09:31

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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180 comments posted | 71 in the Living with multiple sclerosis group

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Awe god bless you Diane. You sound as though your a strong lady. Good for you you have the right attitude. Use it or lose it my motto exactly. I've had ms forty years now I still walk I'm a fighter like yourself. Please keep pushing forth. People that give in to ms will be more disabled than people that dont. As I live alone I dont have much choice really as I can I only have myself to care for. Your an inspiration to others that say they cant. I never say I cant I say I have to being alone. Cheers Diane for being a strong lady x

What is your MS story? Let's share! https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2021-01-23 09:31:25

LindaBlacker

11/02/2021 at 19:25

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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DianeH please dont give up the fight. I'm 64yrs old. Had ms since I was 24. Giving up means your closer to death. I walk with a stick and I could never even think about a wheelchair. Having to rely on someone else. I like to be independent as long as possible. Please push yourself it's worth it for your health

What is your MS story? Let's share! https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2021-02-11 19:25:32

Dianeh

15/02/2021 at 15:35

Dianeh

Last activity on 02/04/2024 at 19:54

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I think I have given up most of the fight I don’t do what I want anymore, I just sit and think I want to walk the dogs go kayaking see the outside world but I just sit and put on weight, I need a kick up the bum.

What is your MS story? Let's share! https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2021-02-15 15:35:18

LindaBlacker

16/02/2021 at 09:53

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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If you dont move push yourself. Your body will give up the fight. I've had ms almost 41yrs. If I didnt push myself I'd be in a wheelchair by now or even dead. I still walk maybe with a stick. I've secondary ms. The ms society says the new findings about exercise. Can in most cases repair the body. Please think about it use it or loose

What is your MS story? Let's share! https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2021-02-16 09:53:38

MSMaven

17/02/2021 at 11:10

MSMaven

Last activity on 10/04/2023 at 18:57

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@Dianeh Stay strong Diane, don't let the MS win! I know how hard it is, every day is a challenge. Don't forget to be kind to yourself and don't get too down on yourself if you can't manage certain things. Every step you take or activity to you engage in is progress!

What is your MS story? Let's share! https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2021-02-17 11:10:39

Dianeh

18/02/2021 at 22:21

Dianeh

Last activity on 02/04/2024 at 19:54

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Your all strong but I think all this lockdown has been the last straw for me, I was supposed to be going away at the end of March April for three weeks, the first proper break for five years kids have left home but I don’t think I will be able to go. I was going in September but that was cancelled.

but we do as we are told and smile

What is your MS story? Let's share! https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2021-02-18 22:21:45

jenny47

06/01/2022 at 12:14

jenny47

Last activity on 12/11/2022 at 14:02

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Hi I have never posted before.. I have SPMS and am now in a wheelchair but I have a personal yoga teacher that I see via Zoom twice weekly. I am a great advocate of yoga now having had it for 3 years. It has helped keep me as mobile as possible. I use to be very active so the frustration now is the worst of it but I will keep ploughing on and hope for a cure asap ! Stay well all and keep moving.

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jenny47

What is your MS story? Let's share! https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2022-01-06 12:14:14

Byojaxs

21/11/2023 at 15:28

Byojaxs

Last activity on 01/07/2025 at 10:33

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I was officially diagnosed about 6 years ago but had been suffering for many years before dr mentioned that he thought I had ms but I never followed up as I though it was all a result of a bad car accident in 1982 where I broke my neck in 3 places and fractured my legs.

unfortunately I just got worse ,I was always falling over etc and was diagnosed with ppms and here in uk there are no drugs for that but I am having testing to try ocuvirus.

As of today not doing so great my walking is shocking I feel like I’m on a vibration plate but I don’t let it get to me and won’t give in .I have a butec patch for pain,baclofen for spasms,amtrityline for my burning feet and that’s it!!!

my advice for ms….don’t let it get you down ,don’t think it’s the end and keep walking even if it’s a struggle because once you are in a wheelchair it will rob you and you will end up stuck in it…I was in one for a while after the car accident and hated it and did everything to get out of it.

What is your MS story? Let's share! https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2023-11-21 15:28:58

What is your MS story? Let's share!

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