- Non-alcoholic fatty liver disease and NASH Forum
- Living with non-alcoholic fatty liver disease (NAFLD) and NASH
- Where do you find support for NASH?
Patients Non-alcoholic fatty liver disease and NASH
Where do you find support for NASH?
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- 7 comments
Hello, I'm new on this forum. I hope I'm doing this correctly. I've recently been diagnosed and I'm not able to properly wrap my mind around this disease. I feel like it came out of nowhere and I don't know what to do with it. Where do you all find support for this? Are there groups out there that I don't know about or organisations? Or do you just talk to your family and friends about it? I don't know where to turn.
Any advice is appreciated.
@CptJanuary Hello CptJanuary, thank you for starting this discussion. There are many ways a person may find support when dealing with a chronic condition, such as nonalcoholic fatty liver disease (NAFLD) and nonalcoholic steatohepatitis (NASH). Each person experiences different symptoms and complications of NAFLD and NASH at varying extremes and each person deals with these symptoms and complications uniquely.
Some people find support through family, others through online communities - such as Carenity, others may find support through local church groups, etc.
Let me tag some other members who may be able to share some advice or resources with you.
Hello members, I hope you are well! How do you find support for your NASH? Are there times when dealing with the condition where having that support is more imperative? Feel free to share here!
@Loveable123 @Janetm @Lea1964 @daubney2 @MaudeLynne @Jendchris @LesleyWhy10101 @rinjama @Glindawitch13 @Sherry01 @Mohan22565 @Angeeba @artwilde @KT15Leon @Jojostarkey @Nickyh13 @Fieldkat
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Courtney_J, Community Manager, Carenity UK
I t came as a bit of a shock as I'm sure you all can understand. I have been dealing with other auto immune disorders for years. I am supported by my family, my rheumatologist and my health centre. I was not expecting this at all
@CptJanuary I was able to find a support group in my area through the British Liver Trust website and that helped. And when it's not convenient for me I of course have Carenity or other Facebook groups.
@CptJanuary I understand completely. I was in shock too. At first it was hard to talk about it with my family or husband because they didn't know anything about it (neither did I for that matter), but now with time as I've learned a bit more and I've had it for a while I can talk to them about it. And my health centre is also a great resource as well, the staff are all so kind.
Hi this is the first time for me and I feel shocked as I was told of my diagnosis a while ago did not realise this was such a chronic condition. Was more concerned about other health problems. Any advice would be appreciated
@Gillianno this is me exactly, now I’m not sure whether to be worried or not!...xx
Once we can back to doctors I'm going to get myself checked again and push for help
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