- Home
- Share
- Forum
- Non-alcoholic fatty liver disease and NASH Forum
- Living with non-alcoholic fatty liver disease (NAFLD) and NASH
- NASH: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
Patients Non-alcoholic fatty liver disease and NASH
NASH: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
- 363 views
- 25 times supported
- 18 comments
All comments
Go to the last comment
JosephineO
Community managerGood advisor
Hello,
Have you seen this discussion? Have you experienced similar issues? What was your experience of diagnosis? :)
@Groovychick @Liam2863 @julania @bonnie_gillies @Willsterino @Shelly_74 @Evamarie @RoseofSharon @Karenlg @POORBOY @Jeannieb12 @melody12 @StumpyDavies @kaz40uk @Southy1 @gwen300 @wendychick1 @Shazjaz @Cazham30 @louj1989 @jmj1980 @Scottishlass1 @learidd @Pammypoppins @CharlieBbz @mrshen
See the signature
Josephine, Community Manager
Hello78
Good advisor
My doctor did explain it to me but I was a bit shocked and found that I learned a lot more on online. I felt better once I could gain knowledge myself and then go back to ask the doctor about it afterwards.
I follow diet plans from more online sources than my doctor, sometimes she seems too rushed to be able to spend quality time discussing the future.
Liam2863
Good advisor
After Ultrasound, MRI with Contrast, Fibroscan and then a Liver Biopsy I was finally told I had Non Alcoholic Steato-hepatitis (NASH). My spouse was with me at the Consultation with the Liver Specialist and he was to the point and told me to get my Blood Sugars under control (being a Diabetic), loose some weight and eat plenty of Vegetables. Or it won't be too long before I end up on the Liver Transplant List!!! = Shocked is not the word I would say to describe how I felt at that time.
Lillymaddy
I was diagnosed by fibroscan Stage2 advanced. over 6 weeks ago. I was given no dietary advice or prognosis.
feel it’s a case of diet lose weight or die! That’s what it feels like
Michael_B
Community managerGood advisor
Hello @Lillymaddy ,
Thanks for your message and welcome!
Hello Members,
I hope you don't mind me tagging you, but I was wondering if any of you could share your experiences with dietary advice or your prognosis regarding NASH? How are you doing now?
@Rocketdog @Photocaz @Tracyno1 @Susdon @Liam2863 @Hello78 @Maggiecampbell @Suz456 @Tortoise1330
Thanks everyone,
Michael
See the signature
Michael_B, Community Manager, Carenity UK
Liam2863
Good advisor
Thanks @Michael_B
Hello @Lillymaddy - What number was your Fibroscan result?
If I can help in any way?
William
Ann63lw
I was told in 2016 I had non alcoholic fatty liver disease. I was told to do nothing it was not that bad. I have now had I show in my blood test and have been advised to loss weight and change diet. I have an appointment on 23rd dec with nutritionist.
Vicky1966
@Ann63lw Hi I have just had diagnosis over the phone by doctor after an ultrasound. It was a wake up call so I've been eating alot more healthy foods and walking 2 miles a day. Lost 10lbs already. Just 4 stone to go.....
Ann63lw
vivi1975
Good advisor
Hello, I'm new here and I'm in this situation. My GP hasn't explained the disease to me, even though I have asked questions. He simply told me to stop eating fatty foods and exercise more, not how to deal with the pain (other than anti-inflammatories) or about any alternative medicine.
If anyone knows about natural remedies or diets that can help, please let me know. Thank you in advance.
Give your opinion
Members are also commenting on...
Living with non-alcoholic fatty liver disease (NAFLD) and NASH
NASH and the coronavirus - how are you coping? have you changed your treatment? let's share!
Living with non-alcoholic fatty liver disease (NAFLD) and NASH
Do you experience pain with your NASH? How do you cope with it?
Living with non-alcoholic fatty liver disease (NAFLD) and NASH
NASH and the coronavirus - how are you coping? have you changed your treatment? let's share!
Living with non-alcoholic fatty liver disease (NAFLD) and NASH
Do you experience pain with your NASH? How do you cope with it?
Articles to discover...
26/12/2022 | Nutrition
Maintaining a healthy diet when living with Non-Alcoholic Steatohepatitis (NASH)
10/06/2022 | News
NAFLD: everything there is to know about fatty liver disease
01/06/2022 | Testimonial
NASH: “If I can help even a few people it will all be worth it”
18/01/2022 | Advice
06/06/2018 | Advice
14/03/2018 | Nutrition
13/12/2018 | Testimonial
Bariatric Surgery & Obesity: Psychological Follow-Up, Cost And Effectiveness
17/12/2018 | Testimonial
Encountering many Diagnosis Errors Before Being Diagnosed with Chronic Asthma and NASH
Subscribe
You wish to be notified of new comments
Your subscription has been taken into account
JosephineO
Community managerGood advisor
One of the main complaints of those diagnosed with Nonalcoholic fatty liver disease is that the doctor spent little to no time explaining to them their condition, the prognosis, and the plan of care at the appointment where they received their diagnosis or where they were told the findings of the medical studies revealing nonalcoholic fatty liver disease.
What has been your experience? Did you have a similar experience or did your doctor explain to you the condition? The plan of care?
Share your experience with others.