NASH: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?

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Patients Non-alcoholic fatty liver disease and NASH

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One of the main complaints of those diagnosed with NASH is that the doctor spent little to no time explaining to them their condition, the prognosis, and the plan of care at the appointment where they received their diagnosis or where they were told the findings of the medical studies revealing nonalcoholic fatty liver disease.

What has been your experience? Did you have a similar experience or did your doctor explain to you the condition? The plan of care?

Share your experience with others.

Beginning of the discussion - 09/07/2019

NASH: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?

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Hello,

Have you seen this discussion? Have you experienced similar issues? What was your experience of diagnosis? :)

@Groovychick@Liam2863@julania@bonnie_gillies@Willsterino@Shelly_74@Evamarie@RoseofSharon@Karenlg@POORBOY@Jeannieb12@melody12@StumpyDavies@kaz40uk@Southy1@gwen300@wendychick1@Shazjaz@Cazham30@louj1989@jmj1980@Scottishlass1@learidd@Pammypoppins@CharlieBbz@mrshen‍ 

NASH: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
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My doctor did explain it to me but I was a bit shocked and found that I learned a lot more on online. I felt better once I could gain knowledge myself and then go back to ask the doctor about it afterwards.

I follow diet plans from more online sources than my doctor, sometimes she seems too rushed to be able to spend quality time discussing the future.

NASH: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
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After Ultrasound, MRI with Contrast, Fibroscan and then a Liver Biopsy I was finally told I had Non Alcoholic Steato-hepatitis (NASH). My spouse was with me at the Consultation with the Liver Specialist and he was to the point and told me to get my Blood Sugars under control (being a Diabetic), loose some weight and eat plenty of Vegetables. Or it won't be too long before I end up on the Liver Transplant List!!! = Shocked is not the word I would say to describe how I felt at that time.

NASH: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
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I was diagnosed by fibroscan Stage2 advanced. over 6 weeks ago. I was given no dietary advice or prognosis. 
feel it’s a case of diet lose weight or die! That’s what it feels like 

NASH: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
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Hello @Lillymaddy‍ ,

Thanks for your message and welcome!

Hello Members,

I hope you don't mind me tagging you, but I was wondering if any of you could share your experiences with dietary advice or your prognosis regarding NASH? How are you doing now?

@Rocketdog@Photocaz@Tracyno1‍ ‍ @Susdon@Liam2863@Hello78@Maggiecampbell@Suz456@Tortoise1330‍ 

Thanks everyone,

Michael

NASH: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
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Thanks  @Michael_B‍ 

Hello @Lillymaddy‍  - What number was your Fibroscan result?

If I can help in any way?

William 

NASH: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?

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I was told in 2016 I had non alcoholic fatty liver disease. I was told to do nothing it was not that bad. I have now had I show in my blood test and have been advised to loss weight and change diet. I have an appointment on 23rd dec with nutritionist.  

NASH: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
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@Ann63lw Hi I have just had diagnosis over the phone by doctor after an ultrasound. It was a wake up call so I've been eating alot more healthy foods and walking 2 miles a day. Lost 10lbs already. Just 4 stone to go.....

NASH: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
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Wow, that is great can you share what you eat please. I would be grateful off any advice I have stopped eating fatty foods and no butter, very little milk and lots of vegetables. Lost 2lb last week. Any advice would be welcome.