Patients Non-alcoholic fatty liver disease and NASH
Topic of the discussion
Posted on 09/07/2019 10:54
One of the main complaints of those diagnosed with NASH is that the doctor spent little to no time explaining to them their condition, the prognosis, and the plan of care at the appointment where they received their diagnosis or where they were told the findings of the medical studies revealing nonalcoholic fatty liver disease.
What has been your experience? Did you have a similar experience or did your doctor explain to you the condition? The plan of care?
Share your experience with others.
Beginning of the discussion - 09/07/2019NASH: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis? https://www.carenity.co.uk/forum/nonalcoholic-fatty-liver-disease-and-nash/living-with-nonalcoholic-steatohepatitis-nash/nash-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-2887
Posted on 09/07/2019 11:03
Have you seen this discussion? Have you experienced similar issues? What was your experience of diagnosis? :)
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Posted on 15/07/2019 11:48
My doctor did explain it to me but I was a bit shocked and found that I learned a lot more on online. I felt better once I could gain knowledge myself and then go back to ask the doctor about it afterwards.
I follow diet plans from more online sources than my doctor, sometimes she seems too rushed to be able to spend quality time discussing the future.
Posted on 25/07/2019 13:51
After Ultrasound, MRI with Contrast, Fibroscan and then a Liver Biopsy I was finally told I had Non Alcoholic Steato-hepatitis (NASH). My spouse was with me at the Consultation with the Liver Specialist and he was to the point and told me to get my Blood Sugars under control (being a Diabetic), loose some weight and eat plenty of Vegetables. Or it won't be too long before I end up on the Liver Transplant List!!! = Shocked is not the word I would say to describe how I felt at that time.
Posted on 04/11/2019 13:20
I was diagnosed by fibroscan Stage2 advanced. over 6 weeks ago. I was given no dietary advice or prognosis.
feel it’s a case of diet lose weight or die! That’s what it feels like
Posted on 19/11/2019 09:52
Hello @Lillymaddy ,
Thanks for your message and welcome!
I hope you don't mind me tagging you, but I was wondering if any of you could share your experiences with dietary advice or your prognosis regarding NASH? How are you doing now?
Posted on 20/11/2019 00:35
Hello @Lillymaddy - What number was your Fibroscan result?
If I can help in any way?
Posted on 03/12/2019 22:39
I was told in 2016 I had non alcoholic fatty liver disease. I was told to do nothing it was not that bad. I have now had I show in my blood test and have been advised to loss weight and change diet. I have an appointment on 23rd dec with nutritionist.
Posted on 15/12/2019 23:00
@Ann63lw Hi I have just had diagnosis over the phone by doctor after an ultrasound. It was a wake up call so I've been eating alot more healthy foods and walking 2 miles a day. Lost 10lbs already. Just 4 stone to go.....
Posted on 16/12/2019 08:53