Logo Carenity
Logo Carenity
Join now! Log in
flag en
flag fr flag es flag de flag it flag us
Home

Forums

Latest discussions
General discussions
See all - Forum index from A to Z

Conditions

Fact sheets
See all - Disease index from A to Z

Magazine

Our featured pieces
News
Testimonials
Nutrition
Advice
Procedures & paperwork

Medications

Medications fact sheet
See all - Medication index from A to Z

Surveys

Ongoing surveys
The results of the surveys

Join now! Log in
  • Forums

    • Latest discussions
    • General discussions
    • See all - Forum index from A to Z
  • Conditions

    • Fact sheets
    • See all - Disease index from A to Z
  • Magazine

    • Our featured pieces
    • News
    • Testimonials
    • Nutrition
    • Advice
    • Procedures & paperwork
  • Medications

    • Medications fact sheet
    • See all - Medication index from A to Z
  • Surveys

    • Ongoing surveys
    • The results of the surveys
  • Home
  • Forums
  • General forums
  • Good to know
  • Autoimmune diseases: how do patients learn about them?
 Back
Good to know

Autoimmune diseases: how do patients learn about them?

  •  62 views
  •  0 support
  •  1 comment

avatar JosephineO

JosephineO

Community manager
21/12/2018 at 15:32

Good advisor

avatar JosephineO

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018


989 comments posted | 40 in the Good to know group

6 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Committed

  • Explorer

  • Evaluator

  • Friend


 View profileView  Add a friendAdd  Write

Today, we would like to hear from patients with autoimmune diseases (lupus, psoriasis, psoriatic arthritis, Crohn's disease, ulcerative colitis, ankylosing spondylitis or rheumatoid arthritis) about how they get information.

At what point in your care journey did you seek information related to your illness and on what topics? Was it useful to you?

What do you do if you need to contact and discuss quickly with your healthcare professional? Who do you turn to when you need help or support?

How do you interact with other patients with the same disease?

Share your opinion by completing our new survey or directly by commenting below!

>> Click here to complete the survey! <<

Thank you in advance and have a good day!

Josephine

Follow

Other groups...

Good to know
All things Christmas
Carenity News
Feedback for Carenity
Fun and games
How to use Carenity
Let's talk about COVID-19
Life beyond illness
News from the media
Procedures and Paperwork
Youth patients with chronic conditions

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

How do you use Carenity? Share your experience!

All comments

avatar robjmckinney

robjmckinney

Ambassador
18/12/2020 at 09:39

Good advisor

avatar robjmckinney

robjmckinney

Ambassador

Last activity on 15/06/2025 at 15:28

Joined in 2015


627 comments posted | 104 in the Good to know group

59 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Committed

  • Explorer

  • Evaluator


 View profileView  Add a friendAdd  Write

It is a shame there is no interest in this discusion as my wife suffers from auto immume diseases that does dominate much of her life.

See the signature

robjmckinney


Autoimmune diseases: how do patients learn about them? https://www.carenity.co.uk/forum/other-discussions/good-to-know/autoimmune-diseases-how-do-patients-learn-about-them-2663 2020-12-18 09:39:04

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

How do you use Carenity? Share your experience!

Articles to discover...

Can you train your brain to feel happier, scientifically?

14/06/2025 | Advice

Can you train your brain to feel happier, scientifically?

Cognitive behavioural therapy (CBT): A way to better live with your thoughts and emotions

09/06/2025 | News

Cognitive behavioural therapy (CBT): A way to better live with your thoughts and emotions

Sports and medications: 10 drugs that could harm your athletic performance

31/05/2025 | News

Sports and medications: 10 drugs that could harm your athletic performance

The fear of flare-ups: How to stop waiting for the worst and take back control

23/05/2025 | Advice

The fear of flare-ups: How to stop waiting for the worst and take back control

NHS - Get help with prescription costs

12/11/2019 | Procedures & paperwork

NHS - Get help with prescription costs

Diclofenac to become a prescription drug

21/01/2015 | News

Diclofenac to become a prescription drug

Opioids Causing Concerns, Problems for Chronic Pain Patients

14/10/2016 | News

Opioids Causing Concerns, Problems for Chronic Pain Patients

Do you have the winter blues?

21/10/2014 | News

Do you have the winter blues?

icon cross

Does this topic interest you?

Join the 500 000 patients registered on our platform, get information on your condition or on that of your family member, and discuss it with the community

Join now! Join now! Join now! Join now! Join now!

It’s free and confidential

Subscribe

You wish to be notified of new comments

 

Your subscription has been taken into account

Join now! Log in

About

  • Who are we?
  • The Carenity team
  • The Science and Ethics Committee
  • Contributors
  • Carenity in the news
  • Certifications and awards
  • Data For Good
  • Our scientific publications
  • Discover our studies
  • Editorial policy
  • Code of conduct
  • Our commitments
  • Legal notice
  • Terms of use
  • Cookies management
  • Contact
  • Carenity for professionals

Quick access

  • Health magazine
  • Search a forum
  • Learn about a condition
  • See medication reviews
  • List of forums (A-Z)
  • List of condition info sheets (A-Z)
  • List of medication fact sheets (A-Z)
  • Language flag fr flag de flag es flag it flag us

The www.carenity.co.uk website does not constitute or replace professional medical advice.