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  • Does your chronic illness make you feel isolated?
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Good to know

Does your chronic illness make you feel isolated?

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avatar Somya.P

Somya.P

Community manager
09/11/2023 at 10:52

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avatar Somya.P

Somya.P

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Last activity on 09/09/2026 at 09:10

Joined in 2023


1,114 comments posted | 343 in the Good to know group

110 of their responses were helpful to members


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Hello everyone!

How are you feeling today? 😊

A chronic illness can have a serious impact on our mental health and social lives, particularly in terms of feelings of isolation. Whether you're a seasoned warrior or someone newly navigating the challenges of a chronic condition, I'm curious to hear your thoughts.

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@Chris77 @Coconut1996 @Kathleen3863 @kayone @PC123456 @SweetGabie13 @Jantan @Gracefraser @Sophiem90 @Sedoyilia1979 @simonlbradfield @KalebRamirez2020 @Kevinclaes @Marriobe @shaidar @jamesm

Does your chronic illness make you feel isolated? How do you cope with these feelings, and have you found any effective ways to connect with others who understand your journey?

Feel free to share your personal experiences, tips, or just lend a virtual ear to those who might be going through a tough time. Let's build a supportive space for each other!

Looking forward to hearing your stories and insights. 💙

Take care,

Somya from the Carenity team 🌼


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avatar robjmckinney

robjmckinney

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09/11/2023 at 21:43

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avatar robjmckinney

robjmckinney

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Last activity on 09/09/2026 at 19:41

Joined in 2015


653 comments posted | 111 in the Good to know group

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Oh! to get time to feel lonely, I have witnessed these things in others, where it was family I set out to rectify it but outside my family, no I don't. I see this as a growing problem with the isolated lives of the newer generations who don't establish family relationships. Illness does drive many away but family should take up the slack but for others what is there. While visiting family in hospital I witnessed a man who never had a visitor in two years. My Dad I took in to my home to resolve his issues while recovering from cancer while alone, he lived some years with us. For my grandchild's mother living alone with mental health conditions as well phyisical issues. As she drifts in and out of hospital being alone has major issues for logistics as well the personal issues. Isolation is an issue and a growing problem as we choose to live alone and not have families. A state promoted social isolation since the 60s to break up the family, now the growing selfishness of individuals compound the issue. Illness compounds the lot and how we resolve it will become one of the greatest solution for society!

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robjmckinney


Does your chronic illness make you feel isolated? https://www.carenity.co.uk/forum/other-discussions/good-to-know/does-your-chronic-illness-make-you-feel-isolat-5211 2023-11-09 21:43:08

avatar JazzyC

JazzyC

17/12/2023 at 16:04

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avatar JazzyC

JazzyC

Last activity on 04/05/2024 at 07:55

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I make a conscious effort to get out with people I know. In the past I have isolated myself and lacked self confidence to go out. As the nurse said with my health issues most people would be housebound but with the help of my kids and friends they push me me to get out

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Janet Collins


Does your chronic illness make you feel isolated? https://www.carenity.co.uk/forum/other-discussions/good-to-know/does-your-chronic-illness-make-you-feel-isolat-5211 2023-12-17 16:04:26

avatar chrissie2018

chrissie2018

09/09/2026 at 18:26

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avatar chrissie2018

chrissie2018

Last activity on 09/09/2026 at 19:21

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Yes my illness makes me isolated as I have mild sleep apnea mild hearing loss and osteoarthritis which is debilitating in itself tbh I feel like hibernating and act like a recluse

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C Newton


Does your chronic illness make you feel isolated? https://www.carenity.co.uk/forum/other-discussions/good-to-know/does-your-chronic-illness-make-you-feel-isolat-5211 2026-09-09 18:26:12

avatar sdonnelly12

sdonnelly12

09/09/2026 at 18:54

avatar sdonnelly12

sdonnelly12

Last activity on 09/09/2026 at 18:54

Joined in 2020


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Yes l speaking with psychology

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Sdonnelly


Does your chronic illness make you feel isolated? https://www.carenity.co.uk/forum/other-discussions/good-to-know/does-your-chronic-illness-make-you-feel-isolat-5211 2026-09-09 18:54:10

avatar Vanessa1967

Vanessa1967

09/09/2026 at 20:39

avatar Vanessa1967

Vanessa1967

Last activity on 09/09/2026 at 21:13

Joined in 2020


1 comment posted | 1 in the Good to know group


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I feel isolated and lonely as well as depressed as I sit in my living room with the TV as the only thing to listen too. Because I don't look any different and I talk to people who know my health conditions but they don't have any idea what I am feeling like and they know what I can do still, but don't think about what I can't do anymore. I don't let people know that I'm struggling with things I need help with now, And I hide the fact that I don't have the strength to do a lot of things, as it might sound like I'm asking for help from them, and I don't want to stop people from seeing me, then they don't want to call as they have to help me out with some things. I'm not as active as I was and I have a hard time to get motivated to do something or go somewhere. Life has definitely slowed down and I don't want to be a burden on people either. On days out that's a big deal for me to get ready for. I can't walk as fast as I did, I can't stand up for long without needing to rest or use the loo. These times need to be prepared for ahead of time for my needs and comfort. So everything needs attention beforehand if you want a day out with no problems or accidents happening. I have to stop thinking about my pride and be honest with friends and family who need me to be upfront and tell them about my condition and the effect it's done to me and effected my mobility and quality of life. My independence is important to me, although I need company and help with the day to day things needed to get through our lives. I need to speak openly about the things I can't do anymore or need help with now, instead of keeping it in, and worrying about it, even though it's not getting done. I am usually ok to talk about issues but I'm not as confident with telling everyone that I can't do something anymore, as I'm hearing it and waiting to see what th

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Vanessa Hamilton


Does your chronic illness make you feel isolated? https://www.carenity.co.uk/forum/other-discussions/good-to-know/does-your-chronic-illness-make-you-feel-isolat-5211 2026-09-09 20:39:21

avatar BrianM

BrianM

10/09/2026 at 04:23

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avatar BrianM

BrianM

Last activity on 10/09/2026 at 04:24

Joined in 2015


51 comments posted | 11 in the Good to know group

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Growing up in a loveless home created deep emotional deprivation, causing me to withdraw inward. Without guidance, I developed severe anxiety, guilt, and neurotic behavior around my sexuality, which derailed my education and mental well-being. My emotionally distant parents left me unable to form genuine friendships or healthy relationships with women, as I spent my life searching for the maternal affection I never received.Now 82, I carry over 75 years of unresolved trauma. Despite seeking therapy early in life, I still lack self-belief and struggle to be my authentic self. This leaves me feeling disconnected from my wife, son, and grandchildren, and my bottled-up frustration sometimes leads to outbursts I regret.My condition was diagnosed as a severe emotional block that impacts my ability to function and connect with others. While Carl Jung suggested that some people naturally drift toward a peaceful, hermit-like existence, I feel trapped by my isolation. Because I appear "fine" on the outside, others fail to understand my deep internal struggle, leaving me longing for true human connection and someone who understands my journey.

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BrianM


Does your chronic illness make you feel isolated? https://www.carenity.co.uk/forum/other-discussions/good-to-know/does-your-chronic-illness-make-you-feel-isolat-5211 2026-09-10 04:23:52

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