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“I wish people knew this about living with a chronic illness…”
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Peggylea
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Peggylea
Last activity on 11/06/2026 at 18:38
Joined in 2015
9 comments posted | 1 in the Good to know group
2 of their responses were helpful to members
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I wish people could understand the pain that you have to deal with and the effect the tablets that you are given does to you I have days that I just don't want to get out of bed because of the pain I have just getting up and starting the day How slow my walking is and I cannot help it I was turned down for going to a pantomime by my son and his family because I walked to slow It really hurt me But he didn't even think about how I felt Needless to say I didn't ask to go anywhere else with them
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Somya.P
Community managerGood advisor
Somya.P
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Last activity on 11/06/2026 at 18:49
Joined in 2023
1,100 comments posted | 342 in the Good to know group
110 of their responses were helpful to members
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Hello everyone 🌿
I hope you’re doing as well as possible today.
Living with a chronic illness often means carrying realities that aren’t visible from the outside. Fatigue, pain, uncertainty, mental load… many of these things don’t show up, yet they shape daily life in powerful ways.
Sometimes, what’s hardest isn’t the illness itself, but the misunderstandings, assumptions, or silence from others who don’t truly know what it’s like.
💬 Let’s open the conversation:
Your words may resonate with someone who feels unseen or misunderstood and help build empathy where it’s needed most. 💙
Looking forward to reading your thoughts,
Somya, from the Carenity team 🌼
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