Living with a chronic illness often means carrying realities that aren’t visible from the outside. Fatigue, pain, uncertainty, mental load… many of these things don’t show up, yet they shape daily life in powerful ways.
Sometimes, what’s hardest isn’t the illness itself, but the misunderstandings, assumptions, or silence from others who don’t truly know what it’s like.
💬 Let’s open the conversation:
What is one thing you wish people understood about living with a chronic illness?
Is there a common phrase, belief, or reaction that feels particularly frustrating or hurtful?
If you could say one sentence to someone who has never lived with a chronic condition, what would it be?
Your words may resonate with someone who feels unseen or misunderstood — and help build empathy where it’s needed most 💙
Looking forward to reading your thoughts, Somya, from the Carenity team
Somya.P
Community managerGood advisor
Somya.P
Community manager
Last activity on 15/12/2025 at 18:20
Joined in 2023
834 comments posted | 279 in the Good to know group
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Hello everyone 🌿
I hope you’re doing as well as possible today.
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Living with a chronic illness often means carrying realities that aren’t visible from the outside. Fatigue, pain, uncertainty, mental load… many of these things don’t show up, yet they shape daily life in powerful ways.
Sometimes, what’s hardest isn’t the illness itself, but the misunderstandings, assumptions, or silence from others who don’t truly know what it’s like.
💬 Let’s open the conversation:
Your words may resonate with someone who feels unseen or misunderstood — and help build empathy where it’s needed most 💙
Looking forward to reading your thoughts,
Somya, from the Carenity team