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“I wish people knew this about living with a chronic illness…”
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Peggylea
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Peggylea
Last activity on 17/07/2026 at 10:33
Joined in 2015
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I wish people could understand the pain that you have to deal with and the effect the tablets that you are given does to you I have days that I just don't want to get out of bed because of the pain I have just getting up and starting the day How slow my walking is and I cannot help it I was turned down for going to a pantomime by my son and his family because I walked to slow It really hurt me But he didn't even think about how I felt Needless to say I didn't ask to go anywhere else with them
VICKICOFFEY
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VICKICOFFEY
Last activity on 19/07/2026 at 16:46
Joined in 2017
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I wish people knew that just because we get up shower and make ourselves presentable, that doesn't mean we aren't sick or hurting. "Well you look fine" is one I hear a lot. Makes me crazy. People have NO clue about the pain I go thru on a daily basis and wont-- unless and until they are in the same predicament.
lesmal
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lesmal
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Last activity on 19/07/2026 at 14:11
Joined in 2018
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I've had epilepsy for 52 years and it's been a long, traumatic and tiring journey. People don't understand the many different types of seizures, together with the physical impact it has on one's body, emotions and mental health. Hormonal imbalances play a huge part in the frequency of seizures, as well as all the side effects of both the epilepsy medication and other medications one is on for other health issues.
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Les
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Somya.P
Community managerGood advisor
Somya.P
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Last activity on 20/07/2026 at 17:07
Joined in 2023
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Hello everyone 🌿
I hope you’re doing as well as possible today.
Living with a chronic illness often means carrying realities that aren’t visible from the outside. Fatigue, pain, uncertainty, mental load… many of these things don’t show up, yet they shape daily life in powerful ways.
Sometimes, what’s hardest isn’t the illness itself, but the misunderstandings, assumptions, or silence from others who don’t truly know what it’s like.
💬 Let’s open the conversation:
Your words may resonate with someone who feels unseen or misunderstood and help build empathy where it’s needed most. 💙
Looking forward to reading your thoughts,
Somya, from the Carenity team 🌼
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