Welcome to the group for digestive disorders!

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Edited on 03/02/2016 at 11:00

Hello everyone,

I am your community manager, Marina.

In this group you can share your thoughts on digestive disorders. How you cope with your condition in daily life, how it affects you, etc. If you have any questions you can also share them here.

Please don't hesitate to introduce yourself to the other members and get a discussion going.

All the best

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Unregistered member

05/11/2017 at 09:56

Hi all. Apart from my arthritis and Parkinson's I also have Gastroparesis with a gastric emptying of approximately 5 days. Cant take pain killers and struggling with my Parkinson's meds. Anyone else struggling with this condition and also having difficulties with their local health funding?

Andrews 48

Welcome to the group for digestive disorders! https://www.carenity.co.uk/forum/other-discussions/living-with-digestive-disorders/welcome-to-the-group-for-digestive-disorders-146 2017-11-05 09:56:43

JosephineO

Community manager

08/11/2018 at 15:03

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JosephineO

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Last activity on 15/07/2024 at 09:21

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989 comments posted | 8 in the Living with digestive disorders group

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@Andrew48 @beatrix

Hello,

How is everyone keeping? Any updates to share on your condition? :)

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Josephine, Community Manager

Welcome to the group for digestive disorders! https://www.carenity.co.uk/forum/other-discussions/living-with-digestive-disorders/welcome-to-the-group-for-digestive-disorders-146 2018-11-08 15:03:45

Jennyh44

20/07/2020 at 13:16

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Jennyh44

Last activity on 12/08/2023 at 12:46

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24 comments posted | 2 in the Living with digestive disorders group

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Hi, I have had my gallbladder removed in 2017 be cause of a acute pancreatitus, but have since had about 7 further attacks and had to be Hospitalized. They are now saying it could be cholangitis. I am so confused as I do not drink or smoke. Each time I go in to be stabilised I come away without a diag nosis. My last hospital visit was in May and because of Covid I have heard nothing since. I have just, and still recuperating with a further attack which I have dealt with at home, but feel this is too risky as there are so many complications that can occur. Rang my GP who was most unhelpful, just told me to ring 111 if it became worse. Feeling so frustrated, not knowing my best course of action. Any help would be appreciated.

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Jennifer Hyde

Welcome to the group for digestive disorders! https://www.carenity.co.uk/forum/other-discussions/living-with-digestive-disorders/welcome-to-the-group-for-digestive-disorders-146 2020-07-20 13:16:09

StevieM

04/09/2020 at 17:17

StevieM

Last activity on 04/09/2020 at 17:12

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2 comments posted | 2 in the Living with digestive disorders group

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Hi, I've just joined this site today! I have gastroesophageal reflux disease and I'm looking to connect with others who have it too. I haven't had a lot of success with the medicines I've been given so I'm interested to hear what others have tried.

@Jennyh44‍ I hope you've gotten some help, I've heard cholangitis is very painfull!

Welcome to the group for digestive disorders! https://www.carenity.co.uk/forum/other-discussions/living-with-digestive-disorders/welcome-to-the-group-for-digestive-disorders-146 2020-09-04 17:17:22

Casacapa

07/11/2020 at 08:53

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Casacapa

Last activity on 23/02/2021 at 14:38

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@StevieM hi I have not been diagnosed with reflux ,as I have many other conditions too but my constant mucous production is very stressing for me. My r side of face is painful and inflamed inc mouth nose eyes , I haven’t had a diagnosis on my problems after many explorations in hospital .

Welcome to the group for digestive disorders! https://www.carenity.co.uk/forum/other-discussions/living-with-digestive-disorders/welcome-to-the-group-for-digestive-disorders-146 2020-11-07 08:53:05

Faithkitty

02/08/2022 at 11:47

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Faithkitty

Last activity on 14/07/2025 at 12:15

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19 comments posted | 1 in the Living with digestive disorders group

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I have had ibs for almost 40 years now. I think I have tried almost everything. I suffer mostly with constipation but get bouts of diarrhoea as well. Here’s what has helped me.

When I get wind I find that lying on my left side with my knees tucked up helps, buscopan for cramps, loperamide for diarrhoea , lansoprazole for acid.

I have tried adjusting my diet ( including the low fodmap diet) but no change.

My advice is keep trying new treatments etc until you find what works for you. Ibs is a very personal condition and everyone suffers differently.

Hope someone finds this helpful xx

Welcome to the group for digestive disorders! https://www.carenity.co.uk/forum/other-discussions/living-with-digestive-disorders/welcome-to-the-group-for-digestive-disorders-146 2022-08-02 11:47:50

MrsELarkin

29/08/2022 at 15:21

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MrsELarkin

Last activity on 06/10/2025 at 23:31

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123 comments posted | 4 in the Living with digestive disorders group

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I was diagnosed with Coeliac Disease at the age of 2years and I am now 64. Despite sticking rigidly to the Gluten Free diet I have experienced varying digestive problems and was diagnosed with IBS 20 years ago. I think they go hand in hand as they both result in swelling of the gut and chronic gut pain. I now take Omeprazole which has lessened my reliance on Gavascon. Good wishes to all with similar, please share!

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EileenL

Welcome to the group for digestive disorders! https://www.carenity.co.uk/forum/other-discussions/living-with-digestive-disorders/welcome-to-the-group-for-digestive-disorders-146 2022-08-29 15:21:48

JazzyC

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14/03/2024 at 20:56

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JazzyC

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Last activity on 04/05/2024 at 07:55

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293 comments posted | 2 in the Living with digestive disorders group

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I have a large hiatus hernia which ruptures for fun but they can't operate on it as I have chronic brittle asthma and COPD. I also have diviculitus and however hard I try to manage both conditions with diet it is very difficult. What I can tolerate for 1 often upsets the other t. The one thing I have discovered is that I can't eat gluten which is expensive and even though it much more readily available than it was it can still be difficult to get sometimes. As my son jokes it is easier to say what I can eat than what I can't.

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Janet Collins

Welcome to the group for digestive disorders! https://www.carenity.co.uk/forum/other-discussions/living-with-digestive-disorders/welcome-to-the-group-for-digestive-disorders-146 2024-03-14 20:56:02

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MrsELarkin

27/05/2024 at 17:00

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MrsELarkin

Last activity on 06/10/2025 at 23:31

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123 comments posted | 4 in the Living with digestive disorders group

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@JazzyC I must say, you sound like you're juggling with a fair number of chronic conditions at once! I can only express my empathy for struggles and that you are a trooper to just cope. Good wishes for the future x

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EileenL

Welcome to the group for digestive disorders! https://www.carenity.co.uk/forum/other-discussions/living-with-digestive-disorders/welcome-to-the-group-for-digestive-disorders-146 2024-05-27 17:00:35

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