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Living with endometriosis

Did your doctor take your endometriosis pains seriously?

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avatar Lulubeans

Lulubeans

22/06/2020 at 14:53

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avatar Lulubeans

Lulubeans

Last activity on 08/12/2021 at 16:13

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6 comments posted | 6 in the Living with endometriosis group

1 of their responses was helpful to members


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Hello all, I've just joined the site and I'm interesting in hearing about others'  experience with their doctors.. I went through several doctors before I finally found a specialist who listened to me and diagnosed my endo. From the beginning my usual gynaecologist seemed to think I was exaggerating or making it up and kept telling me that I should just follow a diet and exercise more to make my pain stop. 

From talking with a few friends who also have endo it seems like this isn't an uncommon experience... Did any of you also have a hard time convincing your doctor that something was wrong?

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avatar Mina145

Mina145

22/06/2020 at 15:19

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avatar Mina145

Mina145

Last activity on 27/03/2024 at 10:48

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18 comments posted | 12 in the Living with endometriosis group


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@Lulubeans I took a long time for me to get a diagnosis as well. My gyno originally thought I had a hormonal imbalance or just a bad period but after several visits and my breaking down in tears in her office trying to describe the pain, she finally referred me to a specialist. I had some trouble getting some people in my family to understand what I was going through as well, they thought I was just being dramatic.


Did your doctor take your endometriosis pains seriously? https://www.carenity.co.uk/forum/other-discussions/living-with-endometriosis/did-your-doctor-take-your-endometriosis-pains-3487 2020-06-22 15:19:33

avatar Courtney_J

Courtney_J

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22/06/2020 at 16:26

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avatar Courtney_J

Courtney_J

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Last activity on 13/10/2022 at 16:47

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1,279 comments posted | 6 in the Living with endometriosis group

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@Lulubeans @Mina145 Hello Lulubeans and Mina145, thank you both for creating and participating in this discussion. I'm sorry to hear that you don't feel like you were taken seriously by your doctors. Let me tag som other members who can also weigh in on this topic.

Hello members, I hope you don't mind that I've tagged you. How has your experience been with your doctors? Do you feel that your doctor took you seriously? Did he or she really listen to you? Were you misdiagnosed or diagnosed late because of it? Feel free to share here!
@Ice ice baby‍ @CARNAS‍ @Mandyuk82‍ @Kastur87‍ @Sunshine56‍ @Cherryorchid1101‍ @Coco382014‍ @Luckyvibe‍ @chezzles‍ @Cairine2010 ‍ @fionaneli‍ @Maryuk86‍ @lucybundle‍ @sangor10‍ @Bartongilbey‍ @katrinaj87‍ 

Take care,
Courtney 

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Courtney_J, Community Manager, Carenity UK


Did your doctor take your endometriosis pains seriously? https://www.carenity.co.uk/forum/other-discussions/living-with-endometriosis/did-your-doctor-take-your-endometriosis-pains-3487 2020-06-22 16:26:24

avatar Maryuk86

Maryuk86

22/06/2020 at 16:56

avatar Maryuk86

Maryuk86

Last activity on 29/10/2024 at 18:30

Joined in 2015


2 comments posted | 2 in the Living with endometriosis group


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I was going up and down to the doctors/hospital for a number of years before I was taken seriously. They kept telling me that the pain was in my head. I did get a diagnosis eventually when my husband pushed for them to do the laparoscopy.


Did your doctor take your endometriosis pains seriously? https://www.carenity.co.uk/forum/other-discussions/living-with-endometriosis/did-your-doctor-take-your-endometriosis-pains-3487 2020-06-22 16:56:08

avatar CJames

CJames

10/03/2021 at 11:31

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avatar CJames

CJames

Last activity on 10/03/2021 at 11:00

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10 comments posted | 3 in the Living with endometriosis group

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This makes me so sad reading all of this. I just went through a nightmare experience trying to get a diagnosis for my teenage daughter, and to know that this happens what sounds like regularly is both relieving (to know that it wasn't just us) but also so saddening. My daughter had been having pains for a few years and I admit that at the beginning I thought she was exaggerating her normal period cramps (which now in hindsight I feel so awful about not taking her seriously myself as her mother). Finally in the last year it got to the point where she could barely get out of bed, so we looked for help. Our GP was useless and we had to really press the gynaecologist and call several times to convince her to even consider looking at endometriosis. 


Did your doctor take your endometriosis pains seriously? https://www.carenity.co.uk/forum/other-discussions/living-with-endometriosis/did-your-doctor-take-your-endometriosis-pains-3487 2021-03-10 11:31:46

avatar Lulubeans

Lulubeans

08/12/2021 at 17:26

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avatar Lulubeans

Lulubeans

Last activity on 08/12/2021 at 16:13

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6 comments posted | 6 in the Living with endometriosis group

1 of their responses was helpful to members


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@CJames Yes, unfortunately it seems like it's status quo... I don't know if  anything is being done to change things.


Did your doctor take your endometriosis pains seriously? https://www.carenity.co.uk/forum/other-discussions/living-with-endometriosis/did-your-doctor-take-your-endometriosis-pains-3487 2021-12-08 17:26:47
avatar exit

Unregistered member

03/02/2023 at 15:53

To everyone who’s commented, including the OP, I am researching this for my dissertation.

Please get in touch if you are interested, or see my newly posted survey in the thread. :)


Did your doctor take your endometriosis pains seriously? https://www.carenity.co.uk/forum/other-discussions/living-with-endometriosis/did-your-doctor-take-your-endometriosis-pains-3487 2023-02-03 15:53:31

avatar nikki77

nikki77

15/04/2024 at 19:31

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avatar nikki77

nikki77

Last activity on 13/12/2024 at 07:57

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32 comments posted | 7 in the Living with endometriosis group

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Not at all my doctor fobbed me off many times I've been fobbed off by many doctors in my surgery I even changed doctors and he told me it was severe period pain

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nicola kennedy


Did your doctor take your endometriosis pains seriously? https://www.carenity.co.uk/forum/other-discussions/living-with-endometriosis/did-your-doctor-take-your-endometriosis-pains-3487 2024-04-15 19:31:03

avatar Somya.P

Somya.P

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13/05/2025 at 23:33

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avatar Somya.P

Somya.P

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Last activity on 21/05/2025 at 18:19

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622 comments posted | 7 in the Living with endometriosis group

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Hi everyone, just bringing back this important thread in case you missed it!

This discussion on how doctors respon, or don’t respond, to endometriosis pain is sadly still incredibly relevant. Many members shared stories of being dismissed, misdiagnosed, or told their pain was “just a bad period.” If that’s something you’ve lived through, this could be a good place to reflect or connect with others who’ve experienced the same.

💬 Have your doctors taken your symptoms seriously?

📋 Did it take a long time to get diagnosed?

🤝 Or have you found a provider who really listens?

@Corinnesmith31 @Maggs62 @becky1970 @Nispa1 @pixieb @snow.white @tinkerjack1912 @twecolynne @archybald1 @Natasha11 @Fibromates @mcintam @TitchK @Bartongilbey @sangor10 @meme23 @Maryuk86 @fionaneli @Luckyvibe @Coco382014 @Sunshine56 @CARNAS @Iceicebaby @queenie85 @Brunette @rogue_1990 @Mysti75 @nikki77 @Mblyth @Louise84 @Tracy-mack @slousa @esw048 @Traceyaa @Spoonie_51 @Sarabox @Gina40 @Zoe0505 @Dayannapr @bendenning @topi34 @Rrgfeeg @HVID55 @CandiceT @Pennylein64 @imanusardi @Jempin @Emily7798 @JackieVR @marhan20 @Claire @Kimbad1990

If you’ve joined more recently or just never saw this thread, now’s the perfect time to jump in. Let’s make sure no one feels alone in this!

Take care,

Somya from the Carenity team 🌼

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Somya from the Carenity team 🌼


Did your doctor take your endometriosis pains seriously? https://www.carenity.co.uk/forum/other-discussions/living-with-endometriosis/did-your-doctor-take-your-endometriosis-pains-3487 2025-05-13 23:33:17

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