Do you have Secondary Progressive MS?

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Vallyvoo

05/08/2020 at 15:58

Vallyvoo

Last activity on 01/02/2024 at 04:37

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1 comment posted | 1 in the Living with multiple sclerosis group

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I have had ms since 2004 and it was rrms but I’m having more problems and my consultant has mentioned secondary ms to me .i last has treatment of lemtrada ( which put me in icu ) on a ventilator and in a coma .
I have not received anything since 2015 but I am struggling with thinking memory walkIng tripping up being clumsy .i am booked in for an urgent mri on the 13th of this month then go to relapse clinic on the 26th can anybody give me any advice on what treatment they may offer me please .?

thank you val

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Courtney_J

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06/08/2020 at 09:30

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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1,279 comments posted | 58 in the Living with multiple sclerosis group

11 of their responses were helpful to members

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@Vallyvoo Hello Vallyvoo, thank you for opening this discussion. I'm sorry to hear you've been having a relapse. Let me tag some members who can share their experiences and advice with you.

Hello all, how are you today? Were you diagnosed with secondary progressive MS at the outset, or did your RRMS gradually progress into SPMS? How long did it take for that to happen? How do you cope with relapses? Can you share any insights or advice with Vallyvoo on treatment options?
@Charlee73‍ @Jackie2017‍ @kathy52‍ @KarenWat‍ @OwnedBy2Cats78‍ @GalDriver‍ @SarsMS‍ @CathBriggs‍ @brianbeecroft‍ @Kazzeranne‍ @chellby‍ @Lesley-AnneBrewster‍ @Denise1‍ @Yank34‍ @1302turralass‍ @landan9‍

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK

Do you have Secondary Progressive MS? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/does-anybody-have-secondary-ms-3659 2020-08-06 09:30:35

LindaBlacker

24/08/2020 at 18:36

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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Being told I had leapt from relapsing remitting was almost as bad. As being notified I had ms after numerous tests through the post. I was twenty had a young toddler. That's one hard pill to swallow. It knocked me for six

Do you have Secondary Progressive MS? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/does-anybody-have-secondary-ms-3659 2020-08-24 18:36:19

Do you have Secondary Progressive MS?

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