Fatigue and multiple sclerosis: How does it affect your daily life?

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Somya.P

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Edited on 28/02/2025 at 10:58

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Somya.P

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Hello everyone,

Fatigue related to multiple sclerosis is often challenging to manage and varies from person to person.

Factors such as stress, heat, or daily routines can play a role.

How does this fatigue impact your daily life? Have you developed any habits or strategies that help you cope?

@Yank34 @Christina1958 @Rolley @KarenS @Juliette @Dolores Mawhinney @Sueharmonypuss @Bigfofo @Rhubarb @Shanka1974 @Charlee73 @ellesse @harpingmad @Kazzythompson2013 @emc1cle @Alvina @Hardeepb @Daisybuster @Tracey961 @Julesmcguire @Jackie# @Susiek @LindaBlacker @Loonylou @Garyrobert @Helen0604 @StevieC @Madmax1 @JoMcGowa* @cwright17 @KatieD @ColinSalter @Byojaxs @Elk217015

Feel free to share your experience with the community!

Somya from the Carenity team 🌼

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Shanka1974

28/02/2025 at 11:34

Shanka1974

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Horrendously if I’m honest, I try to push myself and thus probably makes it worse. But I’m a stubborn old mule so will keep trying and damn the consequences

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Dan L

Fatigue and multiple sclerosis: How does it affect your daily life? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/fatigue-and-multiple-sclerosis-how-does-it-affect-your-daily-life-5624 2025-02-28 11:34:37

Helen0604

02/03/2025 at 17:14

Helen0604

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It's not too bad at the moment but the heat doesn't affect me I'm better when it's warm or I'm in a hot country on holiday. The cold makes daily routines hard and I get sorer when it's cold. My pain levels go up. I try to have an hours sleep in the afternoon if I manage to do this it makes a difference and helps.

cwright17

03/03/2025 at 12:17

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cwright17

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I think I'm doing alright with fatigue 🤔 I wake up at something like half 6 or 7 in the mornings, and I know I'll need a nap at around 2 in the afternoon, depending on how well I slept. Last night, I couldn't get properly to sleep! The heating had been accidentally left on manual at 21°C, and I only realised it when I heard the boiler do a fresh round of hot water! 🫣 So, didn't get to sleep until 1/half 1 this morning. I've yet to have a nap yet to catch me up.

Then walking 😬 my legs turn to jelly if I walk from my front door to my back door without my stick (UK terraced house). Walking with my rollator is a pain in the backside, with me having to constantly sit down every 10m or less! It isn't fun, always having to make plans that work around my fatigue.

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Charlotte Hargreaves-Wright (he's also double barrelled his name so he can be "Wright" half the time)

ColinSalter

05/11/2025 at 21:08

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I was suffering from fatigue 20 before diagnosed in 2012 doctor tested me for diabetes which I don't have

Christina1958

07/11/2025 at 04:07

Christina1958

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It totally floors me. Especially when it or I am over hot.

Yank34

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16/11/2025 at 20:03

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Yank34

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Fatigue is certainly 1 of my most detested, disabling & frustrating symptoms, especially having this since 1978. I wish I’d discovered the most effective ‘tool’ to successfully negotiate it but unfortunately haven’t yet! ‘Pacing’ is the oft-used approach but personally NOT possessing sufficient energy to complete even a proportion of activities I want +/or need at any particular time, seems ‘the impossible dream? Therefore, I keep trying, pushing myself & wishing 1 day I WILL do this (& so will you) 🧡

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Fatigue and multiple sclerosis: How does it affect your daily life?​

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Fatigue and multiple sclerosis: How does it affect your daily life?