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  • MS and swallowing difficulties: How do you cope with this symptom?
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Living with multiple sclerosis

MS and swallowing difficulties: How do you cope with this symptom?

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avatar Somya.P

Somya.P

Community manager
10/03/2026 at 15:30

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avatar Somya.P

Somya.P

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Last activity on 10/06/2026 at 18:55

Joined in 2023


1,100 comments posted | 38 in the Living with multiple sclerosis group

110 of their responses were helpful to members


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Hi everyone,

Some people living with MS experience trouble swallowing (dysphagia), which can make mealtimes stressful or even dangerous. It can lead to coughing, choking, or fear of eating in front of others.

✨ Let's share and support each other on this often invisible issue.

  • Have you experienced swallowing difficulties with MS?
  • What adjustments have you made to feel safer while eating or drinking?
  • Have you spoken with a specialist, like a speech therapist, for support?

 @diane2409 @Barrie @Yank34 @arunfc @jnlsmum @Batmam61 @sueseedy @mumstheword @Goonergirl75 @Cutekitty @pavo123 @flyingsub @babyface @sfitzbro @Saladcream! @Hannah_05 @james j walsh @Sweaver @cocozorro @Achybones @Happyjack @Tiny67 @Lindseymarcy @Moo3010 @Jeanniebean @Lyn14a @Kimi1101 @Nathan76 @Jennysymes @Schepers @Mave58 @mikey007 @Sarahmay @stephy @crest1968 @HazelRutter @adreeves @kirstymcfadyen @AnnieO74 @GillianAlexander @Rutheb @Hayley71 @Chell140913 @MandyJ @Pricey @Walshya @babyface59 @Mella7 @Speedybean14 @Bebop0912! @EmmaJfost @Dadksmith @Nnerak @BerniceC @McPherson @Syrenna13 @Kez7442 @wendyloftusmartin @Jeanmary @MysticGill @Tracey1971 @Cathlea @christiane @Bethane @KateXWW @Carol71 @Chalmm @Tamjams @Wendy1972 @DonnaB4 @Sreaky94 @Nathaliedee1 @funkyprincess @TotallyLost @charlotte1981 @MRA-UK @misean69 @FionaCox @Paulhill71 @Josiejo09 @kiranv @Onacrumble @Mandy94 @Sqeakie11 @Katniss @Carol50 @Cherylmoore @asmae96 @Lorraineredmond @Batchelm @JacquelineClift @Pippadee1969 @Carragher11 @Lee411 @murraygrant @Franran3 @kateheath @Ella93

No one should feel alone in this. Every experience shared can make a difference ❤️

Warmly,

Somya from the Carenity team 🌼

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avatar kateheath

kateheath

10/03/2026 at 17:36

avatar kateheath

kateheath

Last activity on 03/06/2026 at 21:37

Joined in 2022


1 comment posted | 1 in the Living with multiple sclerosis group


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I have to eat slowly and food needs to be moist. Worse when I'm having a relapse


MS and swallowing difficulties: How do you cope with this symptom? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-swallowing-difficulties-how-do-you-cope-with-this-symptom-6021 2026-03-10 17:36:03

avatar Yank34

Yank34

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10/03/2026 at 20:52

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avatar Yank34

Yank34

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Last activity on 14/05/2026 at 19:22

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294 comments posted | 61 in the Living with multiple sclerosis group

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Intermittent problems with swallowing has been experienced for approximately the past 11 yrs of the 48 yrs after discovering I had MS. I’m forever grateful of these being only intermittent but when having them, it’s not only so flipping embarrassing (when in public) but potentially life threatening.

The 1st time I experienced this was when my husband, & I were having our 1st evening meal, during a weeks’ holiday to Lanzarote. After having about 2 mouthfuls of food, I began choking. Both my husband & myself were extremely experienced 1st aiders so neither of us were particularly concerned, believing my strong coughing would easily rectify this. Unfortunately it quickly became evident my food blockage was stubbornly stuck although thankfully still being able to somewhat, limitedly breathe, couldn’t talk. After multitudinous, strong coughing & drawing more & more attention from everyone around us, I motioned to my husband to start strong back blows to myself (5x between my shoulder blades).
This didn’t work so again motioned for him to repeat these. Again being unsuccessful, I stood up, moved away from my chair, extended my arms, bent my head a little further downwards & placed the flat of my hands firmly onto the table. so he could begin (up to 5) abdominal thrusts. Luckily the 2nd of these did the trick with my stuck food being very forcibly ejected onto the table; fortunately between our 2 yet unfinished meals 😅. This was embarrassing & caused a large degree of personal anxiety with eating future meals. Choking episodes were also experienced, on a number of times, mainly when eating at home (when alone), once or twice requiring myself to perform back blows, by forcefully ‘banging’ my back against a wall & twice needing to solely performing abdominal thrusts by ‘throwing myself’ onto the back of a hard, wooden chair (easily being done due to being ‘vertically challenged’ / very short.

Something I’ve found even more embarrassing, in approximately the past 5 years, is when after successfully swallowing food, it feels as if my oesophagus ‘goes into spasm’ ie my food becomes ‘stuck midway between my throat & stomach’. This is considerably painful & ‘feel’ I have always been unable to talk - only ever being able to explain this to others with me, via hand gestures! On the 5-6 times this has occurred, this has always lasted between 5 & 15-20 minutes (?) before my oesophagus ‘relaxes’ & the food bolus then descends through my cardiac sphincter/ stomach. This most recently happened sometime between last Christmas & New Year when eating at home with 1 of my adult Godsons.
I’ve been unable to find anything about my aforementioned & oft repeated getting my food ‘stuck’, anywhere on the internet, hence cannot clarify if this is a known phenomena +/or any possible cause(s) of this, plus if there’s any relationship with MS.

It would be very interesting if anyone ‘here’ has had the same or similar experience(s). Wishing everyone all the very best 🫂




See the signature

Ann


MS and swallowing difficulties: How do you cope with this symptom? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-swallowing-difficulties-how-do-you-cope-with-this-symptom-6021 2026-03-10 20:52:51

avatar nameless

nameless

11/03/2026 at 17:03

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avatar nameless

nameless

Last activity on 11/03/2026 at 17:15

Joined in 2017


22 comments posted | 21 in the Living with multiple sclerosis group


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I only have issues swallowing when I'm exhausted (which is a lot these days)


MS and swallowing difficulties: How do you cope with this symptom? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-swallowing-difficulties-how-do-you-cope-with-this-symptom-6021 2026-03-11 17:03:53

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