Logo Carenity
Logo Carenity
Join now! Log in
flag en
flag fr flag es flag de flag it flag us
Home

Forums

Latest discussions
General discussions
See all - Forum index from A to Z

Conditions

Fact sheets
See all - Disease index from A to Z

Magazine

Our featured pieces
News
Testimonials
Nutrition
Advice
Procedures & paperwork

Medications

Medications fact sheet
See all - Medication index from A to Z

Surveys

Ongoing surveys
The results of the surveys

Join now! Log in
  • Forums

    • Latest discussions
    • General discussions
    • See all - Forum index from A to Z
  • Conditions

    • Fact sheets
    • See all - Disease index from A to Z
  • Magazine

    • Our featured pieces
    • News
    • Testimonials
    • Nutrition
    • Advice
    • Procedures & paperwork
  • Medications

    • Medications fact sheet
    • See all - Medication index from A to Z
  • Surveys

    • Ongoing surveys
    • The results of the surveys
  • Home
  • Forums
  • General forums
  • Living with multiple sclerosis
  • MS diagnosis: How long did it take for you?
 Back
Living with multiple sclerosis

MS diagnosis: How long did it take for you?

  •  14 views
  •  0 support
  •  1 comment

avatar Somya.P

Somya.P

Community manager
18/04/2025 at 20:00

Good advisor

avatar Somya.P

Somya.P

Community manager

Last activity on 03/07/2025 at 18:15

Joined in 2023


649 comments posted | 22 in the Living with multiple sclerosis group

52 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

Hi everyone,

Hope you're doing well today!

Getting a diagnosis for multiple sclerosis (MS) can be a long and complex journey. It often involves multiple tests like MRIs, lumbar punctures, and neurological assessments, and for many, it's a time filled with uncertainty and frustration.

So we'd love to hear from you:

How long did it take to get your MS diagnosis?

What was the most difficult part of that period?

Were there any particular symptoms or turning points that finally led to answers?

@teebird @electricwizard @angel85 @Hoofah1 @Jomarian @Deanna @Bitch270 @sheilz @KarenS @Gillian23 @Kathandtony @chapmanjersey @mellymoo59 @JohnStedman @GalDriver @Juliette @traceymarie @halffull @zackie @kathy52 @Susanne66 @chelsea8 @Timemorem25 @Bethy1711 @Sunray7 @giggi61 @Charliecat @Kencomax @Shanka1974 @JohnLegge @PetrenaB @Mollytora @Lina679 @Fran123 @stevebriggs @nickynoo @MargaretP @FredaBurke @Hollissam1 @evlittle @AliSyn @Madmav @bigk @Rosalind75 @Tracey63 @Panda50 @Linzij @debbs54 @emc1cle @Debs50 @Debraf @Dannit @maisiemuppet @EmmaJfost @Desertflower @Eley24 @sbh2555 @helshel @Dina83 @Caroline72 @Tracey1971 @Maryma @Maryanna @goldiebones @SharonJ @Helen2128 @Heidif68 @Diva27 @Susiek @Sk8rGirl @David1970 @2212dianne0 @NMarshall @girlshirl @Charlie219 @Anita7263 @Harry1771 @FitzyDebs @Hattie24 @Rubytheareggienan @MarkClayt @Cazbarr57 @MSWarrior123 @Madmax1 @Mattyh75 @Lornafe191 @Katwatson72 @Paulmcintyre @Hoppity @Dlr1618 @Lindseypharoah @lucy2000t2000 @Lee411 @Rose1962 @Rachel5662 @volvof88 @ColinSalter @ehitschmann @TomShillington @StemCell07

Let's share our experiences to help others who might still be in that in-between phase. You're not alone.

Looking forward to reading your stories,

Somya from the Carenity Team🌼

Follow

Other groups...

All things Christmas
Carenity News
Feedback for Carenity
Fun and games
Good to know
How to use Carenity
Let's talk about COVID-19
Life beyond illness
News from the media
Procedures and Paperwork
Youth patients with chronic conditions

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

How do you use Carenity? Share your experience!

All comments

avatar ColinSalter

ColinSalter

20/04/2025 at 11:54

Good advisor

avatar ColinSalter

ColinSalter

Last activity on 25/06/2025 at 18:53

Joined in 2021


14 comments posted | 8 in the Living with multiple sclerosis group

6 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Explorer


 View profileView  Add a friendAdd  Write

In 1992 I lost the site of my left eye for a month it came back after treatment from eye outpatient

I was getting tired from 2000

From 1996 I got a burning in my Left buttock

I was finally diagnosed in 2012 when I went numb below the waist


MS diagnosis: How long did it take for you? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-diagnosis-how-long-did-it-take-for-you-5686 2025-04-20 11:54:09

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

How do you use Carenity? Share your experience!

Articles to discover...

Sun protection and chronic illnesses: How to stay safe in the sun

05/07/2025 | News

Sun protection and chronic illnesses: How to stay safe in the sun

Screens and the brain: What are the risks of overuse and how can you protect yourself?

28/06/2025 | News

Screens and the brain: What are the risks of overuse and how can you protect yourself?

Women's health: Why is medical research still falling short?

21/06/2025 | News

Women's health: Why is medical research still falling short?

Can you train your brain to feel happier, scientifically?

14/06/2025 | Advice

Can you train your brain to feel happier, scientifically?

NHS - Get help with prescription costs

12/11/2019 | Procedures & paperwork

NHS - Get help with prescription costs

Diclofenac to become a prescription drug

21/01/2015 | News

Diclofenac to become a prescription drug

Opioids Causing Concerns, Problems for Chronic Pain Patients

14/10/2016 | News

Opioids Causing Concerns, Problems for Chronic Pain Patients

Do you have the winter blues?

21/10/2014 | News

Do you have the winter blues?

icon cross

Does this topic interest you?

Join the 500 000 patients registered on our platform, get information on your condition or on that of your family member, and discuss it with the community

Join now! Join now! Join now! Join now! Join now!

It’s free and confidential

Subscribe

You wish to be notified of new comments

 

Your subscription has been taken into account

Join now! Log in

About

  • Who are we?
  • The Carenity team
  • The Science and Ethics Committee
  • Contributors
  • Carenity in the news
  • Certifications and awards
  • Data For Good
  • Our scientific publications
  • Discover our studies
  • Editorial policy
  • Code of conduct
  • Our commitments
  • Legal notice
  • Terms of use
  • Cookies management
  • Contact
  • Carenity for professionals

Quick access

  • Health magazine
  • Search a forum
  • Learn about a condition
  • See medication reviews
  • List of forums (A-Z)
  • List of condition info sheets (A-Z)
  • List of medication fact sheets (A-Z)
  • Language flag fr flag de flag es flag it flag us

The www.carenity.co.uk website does not constitute or replace professional medical advice.