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  • Pain at night
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Living with multiple sclerosis

Pain at night

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avatar stephanyJ

stephanyJ

28/07/2017 at 16:06

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avatar stephanyJ

stephanyJ

Last activity on 15/12/2022 at 21:19

Joined in 2017


19 comments posted | 13 in the Living with multiple sclerosis group


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Hi, hope you all are doing good out there.

I have a question about my sister's MS: she claims to have pain and tingling in her legs at night, which makes it difficult for her to sleep. She wonders if it is one of MS symptoms and if there are others who experience the same thing.

So if anybody suffers the same, and if it is normal for MS, please let me know so that I could tell her not to worry.

Steph

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avatar MargaretP

MargaretP

01/08/2017 at 20:54

avatar MargaretP

MargaretP

Last activity on 14/06/2025 at 12:11

Joined in 2016


6 comments posted | 1 in the Living with multiple sclerosis group


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I certainly get pain and tingling at night and while I'm no expert, I do believe it's the MS. If she's worried though, it's best to talk to her doctor or MS nurse to find out for sure, and if it's a problem there are medicines that help. I'm on Baclofen and that enables me to sleep.

There is a lot of literature and on-line information about MS so reading up on it might help too.

All the very best to your sister..


Pain at night https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/pain-at-night-1902 2017-08-01 20:54:33

avatar Desertflower

Desertflower

28/08/2017 at 23:19

avatar Desertflower

Desertflower

Last activity on 28/05/2025 at 19:17

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5 comments posted | 4 in the Living with multiple sclerosis group


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Hi there

Yes I have suffered with stiffness in my legs and feet now for over a year.It is one of the symptoms related to MS.The muscles tighten but don't always contract,thus leading to pain.Also the nerves are affected in MS, so again this is one of the side effects

 


Pain at night https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/pain-at-night-1902 2017-08-28 23:19:49

avatar Mitchece

Mitchece

23/11/2017 at 11:18

avatar Mitchece

Mitchece

Last activity on 09/01/2021 at 09:31

Joined in 2017


2 comments posted | 2 in the Living with multiple sclerosis group


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Yes I get a lot of pain, tingling and burning sensation in my arms and torso that has at times preventing me from sleeping. My MS nurse suggested gabapentin. I have commenced this drug and await to see if this resolves or improves this discomfort, will keep you posted.

See the signature

Cee


Pain at night https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/pain-at-night-1902 2017-11-23 11:18:54

avatar Cathlea

Cathlea

15/01/2018 at 15:44

avatar Cathlea

Cathlea

Last activity on 13/04/2021 at 21:38

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Hi yes I get lots of MS nerve pain: burning, stinging, gnawing pain. It use to only be a problem at night and amitriptyline use to help. Unfortunately I now get it throughout the day too. I take gabapentin, amitriptyline and co-Codamol and CBD. However, I really don’t think they are working as I’m still in daily pain but some days worse than others. It is very debilitating and each day us a struggle. I try to do some yoga/stretching as the muscles get so tight. I hope your sister can get some medication to relieve her pain. 


Pain at night https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/pain-at-night-1902 2018-01-15 15:44:18

avatar Desertflower

Desertflower

19/01/2022 at 09:01

avatar Desertflower

Desertflower

Last activity on 28/05/2025 at 19:17

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5 comments posted | 4 in the Living with multiple sclerosis group


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LDN is the best non toxic medication to treat MS. If you are taking Opiod drugs though they cancel out its effectiveness I read. Look up the LDN Research Trust to find out more about it.



Pain at night https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/pain-at-night-1902 2022-01-19 09:01:04

avatar flowergirl

flowergirl

05/05/2022 at 21:31

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avatar flowergirl

flowergirl

Last activity on 02/06/2025 at 12:03

Joined in 2022


16 comments posted | 8 in the Living with multiple sclerosis group

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Hi, I see it's an old discussion but I'll comment anyway. I also get pain and tignling in my feet and sometimes in my arms as well. I think it's quite common for MS


Pain at night https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/pain-at-night-1902 2022-05-05 21:31:56

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