Do you have restless leg syndrome?

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rheumiroomie

30/06/2023 at 20:57

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rheumiroomie

Last activity on 30/06/2023 at 20:54

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Hi,

I suffer from restless leg syndrome (RLS) and it often disrupts my sleep. Does anyone else have this problem? What do you do?

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Polina.K

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05/07/2023 at 15:19

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Polina.K

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Last activity on 11/08/2023 at 12:02

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Hey @rheumiroomie! How are you?

Thank you for starting this discussion! I think it is an important topic that we can discuss. I will tag some members who might want to share their thoughts on this matter.

@lacemaker @PollyP @b.lane @JazzyC @KPangela @EmmyJane @Maxitwist @GG2019 @PatsyMS @Heatheruk @Queen10 @Rosebud1967 @Tatjana @Laurajayne @Raythebaker @QueenB @YorkshireJayne @Mandy59

Hello everyone! How are you doing today?

Do you suffer from restless leg syndrome (RLS)? Does it disturb your sleep? How do you cope?

Take care,

Polina from the Carenity team

Do you have restless leg syndrome? https://www.carenity.co.uk/forum/other-discussions/living-with-rheumatoid-arthritis/do-you-have-restless-leg-syndrome-5105 2023-07-05 15:19:32

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Mandy59

06/07/2023 at 23:31

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Mandy59

Last activity on 16/08/2025 at 13:54

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@YorkshireJayne

Thanks for your reply. I shall pass on your tonic water tip to my daughter as she is the one with the rls.
l am awaiting a further appointment with regards to my pins and needles. It started a year after l started injecting weekly methotrexate injections in my thighs. And I have tried injecting my stomach but find it difficult due to limited mobility in wrists so injecting legs is easier. Hope you are well?
Regards

Mandy

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M.Flood

Do you have restless leg syndrome? https://www.carenity.co.uk/forum/other-discussions/living-with-rheumatoid-arthritis/do-you-have-restless-leg-syndrome-5105 2023-07-06 23:31:47

YorkshireJayne

07/07/2023 at 06:22

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YorkshireJayne

Last activity on 17/08/2025 at 09:21

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@Mandy59 I hope it helps her like it has me, it's an awful thing to have.

My friend was on an immune suppressant and the only side effect she had was she felt rubbish for a couple of days afterwards. You'd think that they would find an easier way of giving it wouldn't you? I know I'd struggle to grip the injection and get it into my stomach. Fingers crossed it's something simple they can help you with.

I'm okay thanks, just absolutely knackered all the time with the follicular lymphoma. It makes me laugh how you suffer with an autoimmune disease, then along comes a cancer associated with autoimmune diseases! You couldn't make it up could you? As if we don't have enough to deal with.

Take Care

Jayne x

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Life is for living, do it, no matter what!

Do you have restless leg syndrome? https://www.carenity.co.uk/forum/other-discussions/living-with-rheumatoid-arthritis/do-you-have-restless-leg-syndrome-5105 2023-07-07 06:22:41

Mandy59

07/07/2023 at 23:12

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Mandy59

Last activity on 16/08/2025 at 13:54

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@YorkshireJayne

Sorry to hear you are having an awful time.
l send you my best wishes and hope you get enough rest to help you deal with what you are having to go through.
Yes, you are so right as if having to put up with an autoimmune disease wasn’t enough. Then along comes an add on. Blooming infuriating.

Take care of yourself.
All the best.
Mandy. x

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M.Flood

Do you have restless leg syndrome? https://www.carenity.co.uk/forum/other-discussions/living-with-rheumatoid-arthritis/do-you-have-restless-leg-syndrome-5105 2023-07-07 23:12:40

YorkshireJayne

08/07/2023 at 07:28

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YorkshireJayne

Last activity on 17/08/2025 at 09:21

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@Mandy59 Thanks Mandy, I try to live as normally as I can without overdoing things and have a "nana nap" most days. It's a slow growing cancer, so I may never need treatment, but if I do, I'll take it and see what happens. I've always been a glass half full person, so what will be, will be and all that!

Take care x

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Do you have restless leg syndrome? https://www.carenity.co.uk/forum/other-discussions/living-with-rheumatoid-arthritis/do-you-have-restless-leg-syndrome-5105 2023-07-08 07:28:42

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Somya.P

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Edited on 28/11/2023 at 17:08

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Somya.P

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Hello everyone,

How are you today? 😊

Have you had a chance to check out this ongoing discussion? It could be interesting to gain some insights from some of our new members.

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Do you suffer from Restless Leg Syndrome? What consequence has it had on your daily life? Has it disrupted your sleep?

Don’t hesitate to share your questions/thoughts/advice with us here!

Take care,

Somya from the Carenity team 🌼

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Somya from the Carenity team 🌼

Do you have restless leg syndrome? https://www.carenity.co.uk/forum/other-discussions/living-with-rheumatoid-arthritis/do-you-have-restless-leg-syndrome-5105 2023-11-28 17:00:54

Do you have restless leg syndrome?

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