Mitrofanoff
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Hi @stutaylor,
I advise you to post this question in another discussion group, dedicated to life with MS. Here is the link to the group:
This one is for sharing articles on medical breakthrough and interesting information concerning the condition.
I hope you will have some feedback from other patients 
If you have any questions just let me know!
Kind regards,
Margarita
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stutaylor
stutaylor
Last activity on 03/11/2020 at 21:02
Joined in 2017
9 comments posted | 6 in the Research and useful tips - Multiple Sclerosis group
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Hi I was diagnosed with RRMS in early 2008. Apart from suffering with continuous fatigue and pins/needles, I have only had a few relapses. Over the last couple of years I have increasingly noticed an urgency and frequency for passing urine. My MS consultant advised I see urology. After unsuccessfully self catheterisation and not emptying my bladder I now have had the Mitrofanoff procedure. I was wondering if anyone else has experience of this and would like to discuss its success rate, difficulties catheterising and healing time?