Have you been on Afatinib? Can you share any experiences, opinions or side effects?

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Barbara

26/04/2020 at 15:02

Barbara

Last activity on 25/09/2021 at 10:29

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2 comments posted | 1 in the Treatments for lung cancer group

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Has anybody been on afatinib and how long for .I have been on it about a year and doing ok at the moment some side effects but I have coped with them

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Courtney_J

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27/04/2020 at 11:22

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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1,279 comments posted | 22 in the Treatments for lung cancer group

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@Barbara Hello Barbara, thank you for starting this discussion. I'm glad that you're having good results with afatinib. Let me tag some members who may be able to share their experiences with you.

Hello members, I hope you don't mind that I've tagged you! Have any of you taken on Afatinib? Can you share your experience with Barbara? Did you have any side effects? Is there anything we should know about it?

@Ginny-C‍ @Yanina‍ @Lucy20‍ @Marylove‍ @Kelly01211‍ @Chaos4‍ @Jackston‍ @Ruthrieston‍ @Francisco‍ @Jeff.angela‍

Take care,

Courtney

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Courtney_J, Community Manager, Carenity UK

Have you been on Afatinib? Can you share any experiences, opinions or side effects? https://www.carenity.co.uk/forum/other-discussions/treatments-for-lung-cancer/afatinib-3257 2020-04-27 11:22:52

lizabeth

16/01/2022 at 20:23

lizabeth

Last activity on 09/08/2022 at 17:52

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Sorry to add to this discussion at such a late date. Afatinib was the first treatment I was given. The major side effect was very bad diarrhoea. Far worse was that it stopped working after the first 3-6months. Unfortunately this was the start of a pattern of not working. So since then I have had 5 days of radio therapy, immunotherapy and chemotherapy. I am now waiting to hear about trials that might be available to me.

I do hope you are still taking Afatinib and it is controlling your cancer. Best wishes

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Lizzie

Have you been on Afatinib? Can you share any experiences, opinions or side effects? https://www.carenity.co.uk/forum/other-discussions/treatments-for-lung-cancer/afatinib-3257 2022-01-16 20:23:31

Have you been on Afatinib? Can you share any experiences, opinions or side effects?

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