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Treatments for cancer

Long term effects of chemotherapy

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avatar exit

Unregistered member

03/09/2017 at 22:29

The chemo therapy I received has had major impact on my life. It has left me in periphal neuropathy, a very bad impact on my dyslexia, anxiety, damage to my lungs and the on going treatment of Exemastame I've now put a considerable amount of weight and have a terrible rash on my chest. I have list my job because of my dyslexia, which led to to a suicide atempt.

no one is prepared to be even vaguely interested in the the impact of the treatment once I was discharged by the oncologist.

has anyone else got these types of issues from the chemotherapy.

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avatar Foreverhope

Foreverhope

11/09/2017 at 14:46

avatar Foreverhope

Foreverhope

Last activity on 01/09/2017 at 20:00

Joined in 2017


4 comments posted | 1 in the Treatments for cancer group


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Hi young59 I'm glad to hear you are feeling well. It is cumulative so the more you get the longer it takes to recover from so just be aware of that. Exercise does help you get over it quicker I did gentle walks in between Chemo and now 13 months post Chemo I am back working out 5 times a week and can cycle 10 miles and feel well so keeping fit is vital. Good luck with yr treatment ❤️ X


Long term effects of chemotherapy https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-cancer-treatments/long-term-affects-of-chemotherap-1937 2017-09-11 14:46:03

avatar Margaret1

Margaret1

11/09/2017 at 19:04

Good advisor

avatar Margaret1

Margaret1

Last activity on 06/05/2025 at 20:13

Joined in 2017


89 comments posted | 16 in the Treatments for cancer group

1 of their responses was helpful to members


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Good luck everybody. I had chemo a few years ago and would say I am not over it yet. Yes I'm grateful I've had it and survived it but you are not warned about long term effects or they gloss over them so quickly you hardly have chance to understand them. I still have pain in my bones, get easily tired and seem to have one little problem after another- polyps, urine infections, skin complaints- lots of little ones. I have picked up my life again but seem to have constant concern about little medical problems and if I say I'm not well you see people looking at each other - and I think they are thinking it is to do with the original cancer- but of course it is not - but it upsets me. 


Long term effects of chemotherapy https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-cancer-treatments/long-term-affects-of-chemotherap-1937 2017-09-11 19:04:50
avatar exit

Unregistered member

11/09/2017 at 23:41

Hi young59 best of luck with your treatment, listen to what your nurses tell you.  Rest when you can, eat small amounts and if you can do a bit of exercise, even if you do a small walk just to get out in the air 


Long term effects of chemotherapy https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-cancer-treatments/long-term-affects-of-chemotherap-1937 2017-09-11 23:41:29

avatar Margaret1

Margaret1

12/09/2017 at 08:54

Good advisor

avatar Margaret1

Margaret1

Last activity on 06/05/2025 at 20:13

Joined in 2017


89 comments posted | 16 in the Treatments for cancer group

1 of their responses was helpful to members


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I know when I was having chemo I set myself small targets - walk yo the end of the road, walk round the block , walk round the estate - all depending on what week I was on. Eat well but also what you fancy . Find little things you've enjoy and can do. Rest - remember it does not last forever! 


Long term effects of chemotherapy https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-cancer-treatments/long-term-affects-of-chemotherap-1937 2017-09-12 08:54:29
avatar exit

Unregistered member

20/09/2017 at 00:51

I had chemo six years ago and was quite ill throughout the process even being hospitalised as I could not stop being sick and became very dehydrated. Ended up having further drugs and infusions to stop the sickness and other side effects but whole period of chemo treatment went by with me either sleeping or being so dazed I thought I was losing my memory. Also had terrible pain throughout my body as my bones just ached so much. Took a long time for my memory to come back and I still have bad days. Still have pain throughout my body but now diagnosed as arthritis so back on a concoction of different drugs. When I think back to my pre-cancer days I wonder how I managed to do all the things I did as cannot keep up any more.

I found out most of my information about side effects by looking on the internet as received very little information from the hospital or staff nor did I get much support through this period from any of the professionals I was seeing. When I queried the side effects with my oncologist I was told it would wear off but never did.


Long term effects of chemotherapy https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-cancer-treatments/long-term-affects-of-chemotherap-1937 2017-09-20 00:51:03

avatar toddy1234

toddy1234

Edited on 20/09/2017 at 06:17

avatar toddy1234

toddy1234

Last activity on 10/04/2021 at 20:35

Joined in 2016


10 comments posted | 4 in the Treatments for cancer group


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 hi  seems  i was  poled  into  taking  tablets  again  had a pet scan  recently  and  blood  test which  has  come back  as  local    clear on scan  apart  prostrate  part  of  p.s.a  down to  0  from  6.5  so  thankfully dont  need  chemo  best  wishes  to  u all at  this time  


Long term effects of chemotherapy https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-cancer-treatments/long-term-affects-of-chemotherap-1937 2017-09-20 06:15:39

avatar Eatonbo

Eatonbo

25/09/2017 at 10:55

avatar Eatonbo

Eatonbo

Last activity on 06/09/2024 at 08:02

Joined in 2017


1 comment posted | 1 in the Treatments for cancer group


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I had a cocktail of chemotherapy and radiotherapy for small cell lung cancer and apart from a couple of short stays in hospital for infections brought on by loss of immune system I generally found my treatments trouble free,no pain ,very little discomfort , temporary loss of hair, and having to use very high factor sun cream due to light sensitivity. I guess I've been lucky having a great medical team behind me at Clatterbridge who have kept me informed at every stage about my treatment and possible side affects. My treatment has made me realise how important the National Health Service is and why it must be maintained in it's present format and not degenerated by privatisation. Thanks to all my team at Clatterbridge,Broadgreen,Aintree and Liverpool Royal, I'll be forever grateful for your dedication and expertise, Bob Eaton.

See the signature

robert eaton


Long term effects of chemotherapy https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-cancer-treatments/long-term-affects-of-chemotherap-1937 2017-09-25 10:55:35

avatar JYorks

JYorks

02/10/2017 at 13:12

avatar JYorks

JYorks

Last activity on 26/02/2025 at 18:29

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4 comments posted | 1 in the Treatments for cancer group


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I think everyone different.  Once my chemo finished, felt straight back to normal again.  I only had small breast lump which shrank with chemo and guess was in very good health when I found it.  I suspect how the chemo affects you must depend also on other factors such as type of cancer,  stage and other health conditions.   I 


Long term effects of chemotherapy https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-cancer-treatments/long-term-affects-of-chemotherap-1937 2017-10-02 13:12:25

avatar Margaret1

Margaret1

03/10/2017 at 09:18

Good advisor

avatar Margaret1

Margaret1

Last activity on 06/05/2025 at 20:13

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89 comments posted | 16 in the Treatments for cancer group

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Yes I think a lot depends on the type of cancer, the length of treatment, the chemo drugs used, the health of thepatient etc. but I would say a lot of experts deny the existence of chemo brain and after chemo I certainly could not remember or once nitrate very much. It gas taken a few years for this to start yo come back. I do wish they would hi do you a list ofpissiblesideeffects and discuss them with you if they do occur as you stRt to worry about everyone off them.

Long term effects of chemotherapy https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-cancer-treatments/long-term-affects-of-chemotherap-1937 2017-10-03 09:18:20

avatar Margaret1

Margaret1

03/10/2017 at 09:19

Good advisor

avatar Margaret1

Margaret1

Last activity on 06/05/2025 at 20:13

Joined in 2017


89 comments posted | 16 in the Treatments for cancer group

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Not nitrate but concentrate - typing too fast!

Long term effects of chemotherapy https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-cancer-treatments/long-term-affects-of-chemotherap-1937 2017-10-03 09:19:10
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