Coping with bronchiectasis - Experiences, Advice

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Patients Respiratory system

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Topic of the discussion



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 Anybody know what can i do

Beginning of the discussion - 25/08/2020

Coping with bronchiectasis - Experiences, Advice

• Community manager
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@Crazymother269 Hello Crazymother269, thank you for opening this discussion. I've moved it to our respiratory conditions group for more visibility. emoticon cute Let me tag some other members who can possibly exchange with you.

Hi members, how are you today? Can you share your experience with bronchiecstasis with Crazymother269? Was your bronchiecstasis caused by another condition? How do you cope with it? Are there any treatments that work for you and have made it more manageable?
@Ninja53@roselilly@Martachris@Karenanne66@Shazzamarazza‍ 

Take care,
Courtney

 

Coping with bronchiectasis - Experiences, Advice


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Thankyou. X

Coping with bronchiectasis - Experiences, Advice


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Good advisor

@ Crazymother269

bronchiecstasis - 

MOst probably partly due to having pneumonia several times before I was 5, and also sjorgens for over 40 years.

Coping with bronchiectasis - Experiences, Advice


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i had a bad in fection 4 years ago. I was coughing excessively and it cause me to wet myself.

I couldnt breathe. 

Coping with bronchiectasis - Experiences, Advice


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Hi fellow Bronchiectasis sufferers. I don’t know how it happened because I had n’t been out of the house but I ended up with pneumonia and they told Ron, my friend, that if he had n’t phoned for an ambulance, that I would have died.

I also had swine flu, not at the same time lol but I do get a tad confused date wise but they left me with  Bronchiectasis. My sister has a chronic form of this and the consultant that I saw knows my sister very well. She had pneumonia as a baby, quite a few times in fact as a child. He told me I had a milder form of it and then he showed me the result of my CT scan. It was a picture looking down into my lung and there were holes which he said were at the bottom of the lung. This was the Bronchiectasis and all I could think was that, if I had the mild version, what must my sister go through?.

I was prescribed a new inhaler and was told to stop immediately taking any medication that I was on and to start using a Fostair inhaler. I was to begin taking Carbosisteine capsules and Azithromyacin capulets 3 times a week.

My sister was n’t taking the same meds as me and her next door neighbour, who was diagnosed with the same illness, was. She felt that at 73 years old, they were n’t bothered about her anymore and that it did n’t matter about her medication, just as long as she went along with it. My sister may be 73 and I’ll but it has n’t affected her brain. She went straight to her GP and demanded that she be put on the same but stronger meds than me.

We both have different doctors but our chemists are the same and both of us have been put on a different brand of  Carbosisteine. My sister complains about it but I say surely it is the same make up as the original or else it would be something completely different. Am I correct?.

Coping with bronchiectasis - Experiences, Advice


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Maybe one cheaper than the other. There are a set of numbers on the box a PL number if they match its the same set of ingredients

Coping with bronchiectasis - Experiences, Advice


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Good advisor

@Shazzamarazza
Is the Carbocisteine the capsule form? 

Carbosisteine does not suit everyone, I didnt get on with the capsules but they gave me the liquid form(sugar free in a sachet),Its better than the capsules - I only take it when I need to as although better than capsules I still do not feel right when I have taken it.

The instruction leaflet that comes with the Carbosisteine states the make up of it so compare yours with your sisters leaflet .