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Photo testimonial: KISS syndrome - from mother to son

Published 5 Mar 2019 • By Louise Bollecker

"No, I'm not crazy, cozy, weak or hypochondriac! My chronic migraines, scoliosis, orthopedic problems, stiffness, balance problems and chronic fatigue, it's not me, it's KISS!"
Photo testimonial: KISS syndrome - from mother to son

 

Ornella's testimonial
KISS syndrome, from mother to son

 

témoignage syndrome kiss

On December 25, 2017, I gave birth to my second wonder, my sweet Abel. From birth, complications began. Breastfeeding difficulties, regurgitation, colic, intense and incessant crying... nothing unusual you may say to me, with a newborn baby! That's exactly what the medical professionals thought too, and yet my maternal instinct told me that something was wrong.

"The diagnosis of KISS syndrome for my son"

After considering and almost immediately dismissing a whole series of diagnoses and after consulting a good number of osteopaths, each more qualified than the next, I came across, by "chance", an article about KISS syndrome (acronym of the German name that I will spare you). And then it was a revelation, my son presented the complete clinical picture!
It is a syndrome that is not very well known in our country and can be solved with a few osteopathic manipulations, if it is treated early enough. After having taken my information, only one osteopath knows and treats this syndrome in Belgium, where I live. The appointment is made! On D-Day, the diagnosis is given, KISS syndrome confirmed, first manipulation and a rebirth! I became in contact with groups of parents whose children have KISS syndrome, I was getting more and more information and I dsicovered that this also affects parents, often mothers. At that moment, doubt set in. What if all my little ailments, whose causes have never been found (and it's not for lack of having looked!) were actually related?

"The diagnosis is confirmed for me too"

At the next session, I discussed my symptoms with my son's osteopath, he examines me and the diagnosis is confirmed for me too. I feel so relieved, not only by the manipulation but also by having found the culprit for all these evils after 32 years. No, I'm not crazy, cozy, weak or hypochondriac! My chronic migraines, scoliosis, orthopedic problems, stiffness, balance problems and chronic fatigue, it's not me, it's KISS! Since that diagnosis, quite honestly, my life has changed. Given my late diagnosis, a cure is unexpected for me, but my quarterly appointment with my beloved osteopath is a huge relief. Unfortunately, the manipulation usually does not last more than two months. After the stiffness resumes, so do migraines, even if they are less violent than before.

This testimonial is part of the graduation project of Gaëlle Regnier, a student in photography at the Agnès Varda School of Photography and Visual Techniques in Brussels. She chose chronic pain as the theme of this photo report to highlight the patients and their struggle.

 

Other testimonials
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Alain: "The labour market excludes the chronically ill"

Delphine: "Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome"

Marie: "Irritable bowel syndrome prevents peole from living"

Virginia: "Maintain hope despite the side effects of treatments for rheumatoid arthritis"

Quentin: "Ulcerative colitis won't stop me from travelling"

Carenity

avatar Louise Bollecker

Author: Louise Bollecker, Community Manager France

Community Manager of Carenity in France, Louise is also editor-in-chief of the Health Magazine to provide articles, videos and testimonials that focus on patients' experiences and making their voices heard. With a... >> Learn more

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