Patients Ankylosing spondylitis
How do you cope with AS fatigue?
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One of the symptoms of AS is lack of energy. It may prevent patients from sticking to their habits that they used to have before the diagnosis, like long walks, travelling, long family gatherings, etc.
Is there anything you had to change in your daily habits due to fatigue and lack of energy?
How do you cope with fatigue and lack of energy? What are you tips?
Hi, thank you for letting me join the forum!
I have had AS for 6 years now, and it does cause a lot of fatigue.. I had to get a part-time job as I couldn't work normal hours any more. What helps me, personally, is a hot bath at the end of the day. I add some salts and oils for relaxation.
I have had to modify my lifestyle a lot since I was finally diagnosed 6 years ago. I sleep when I have to sometimes all day but not at night. I'm coping with my life now mostly but my family still don't understand. So now I just have to do what I can when I can and not be ashamed of it. I live alone with one teenage daughter who says she feels lonely because of my condition. She wants to party and have friends over but this is hard on me. So I just have to hope that she will understand eventually. Hugs to anyone in this situation.
hi @malta03 @GloriaG thank you for your comments!
@all: how do you cope with the lack of energy?
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Sleep - a lot - nobody understands and friends disappear - it is very lonely
Having suffered for a very long time with A.S. I have learned to cope with the lack of energy by taking things a bit slower... I don't rush around like I used to, everything now is taken at 'my pace'. If I feel energetic I may walk a little faster, the 'skip' has gone though....lol...lol.
I personally think that everyone must learn to cope with whatever suits them best, not to worry about other people's thinking on 'what you should' be doing, It's what you find that suits YOU and only you.
Painkillers will undoubtedly help, a little exercise may help. Ultimately it's YOUR preference as to how you deal with the lack of energy. Sleeping all day is not the answer, you must keep as active as possible. I know that sounds daft, 'keep as active as possible' when your eyes are on 'stalks', but if you 'tire' yourself a little, a refreshing sleep will come. If you let it?
Stay POSITIVE that always helps.
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How are you today? I thought I would revive this discussion, as fatigue is one of the most common symptoms of AS!
So, how do you cope with the fatigue? Do you have any tips or advice? Have you modified your daily routine or schedule around your fatigue?
@Jason1 @thedavid @liamjcross @CynthiaC @sASha! @1976apache @Coling @Missy2 @danjoshaw60 @eileengreen @Joduell @saxon49 @SuziBloor @DebiJP @Jenpat @Catblonde @Suzief @tracy1966
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Courtney_J, Community Manager, Carenity UK
My answer is Nana Nap, 30 minutes non guilty nap when you can. And an app called head space.
These things help, I feel fatigued every day especially after waking up , and pleanty of greens in your diet. Doesnt make it go away but some days are defo better then others.
Yoga too that's a big help gentle yoga.
I have had AS for many years and consequently learned to live with the feeling of lethargy or tiredness. I have tried to keep as fit as possible by regular visits to the gym and regular long walks and this helps tremendously but I have to admit that once I sit down I can go to sleep easily. Someone suggested that family and friends do not understand and I too have experienced this which can be frustrating particularly as there is a suggestion of being idle.
I have a hard time with this too. I also just kind of just "live with it". And I live with a kettle on the stove and a cup of tea by my side. At night I try to stretch and drink calming tea and make my night environment as relaxing and conducive to sleep as possible, but sometimes the pain is just too strong and/or I end up tired the next morning regardless.
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