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What is your endometriosis story?
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Lulubeans
Hi, I had 10 years at least of chronic pain because of endometriosis but wasn't diagnosed until the end of 2012. It took a while to get an official diagnosis, I went through contraceptive pills and NSAIDs that did nothing. It wasn't until I had a really bad flare that lasted more than a month that I was finally diagnosed. I've since changed contraceptives and it has worked a bit for me, but some days the pain and fatigue is just unbearable.
Mina145
Good advisor
@Courtney_J @Lulubeans Hi, I've had endometriosis for at least 8 years. I couldn't any doctor really to take me seriously, they just keep insisting that I had normal menstrual cramps. To date my endo has just gotten worse and worse and nothing I have tried has worked. I'm supposed to have an operation to take out a cyst and some scar tissue but I don't really see the point. I'm thinking about getting a total hysterectomy to be done with it. I'm just tired. 😔
CJames
Hi, my daughter was recently diagnosed with endometriosis after a few years of dealing with intense pain. Because she's so young they've decided to not do any kind of operation yet and they've put her on a combined pill. It's pretty new to her so for now we're keeping our fingers crossed that it helps.
Somya.P
Community managerGood advisor
Hello everyone,
How are you today? 😊
Have you had a chance to check out this ongoing discussion? It could be interesting to hear from some of our new members.
@marhan20 @JackieVR @Emily7798 @Jempin @imanusardi @Pennylein64 @CandiceT @HVID55 @Mina145 @Lulubeans @CJames @Rrgfeeg @nikita_a907 @elderfield80 @topi34 @bendenning @Dayannapr @Mclellan @Zoe0505 @Gina40 @AndreaBR @Sarabox @Spoonie_51 @Traceyaa @esw048 @slousa @Tracy-mack @Louise84 @Mblyth @nikki77 @Mysti75 @rogue_1990 @pmax1972 @Tash76 @Brunette @em2208 @Spottypants @queenie85 @Ice ice baby @CARNES @CARNAS @Sunshine56 @Coco382014 @Luckyvibe @Cairine2010 @fionaneli @Maryuk86 @meme23 @sangor10 @Bartongilbey @TitchK @mcintam @Fibromates @miskatonic_foxy @Natasha11 @charlie83 @archybald1 @twecolynne
What symptoms led to your endometriosis diagnosis? Were there any misdiagnoses? Which treatments have you tried, and how have they impacted your well-being?
Don’t hesitate to share your story with us here!
Take care,
Somya from the Carenity team 🌼
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Somya
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Courtney_J
Community managerGood advisor
Hello everyone,
How are you doing?
As you know, endometriosis is a condition that is common, yet poorly understood. Many women experience varying symptoms (or sometimes no symptoms at all!), which can lead to misdiagnosis or lengthy waiting period for a diagnosis.
So let's share! What is your endometriosis story? What symptoms did you have? How were you diagnosed? Were you misdiagnosed? What treatments have you tried? How are you doing now?
Feel free to share your experiences here! We're all here to share and support one another!
Take care,
Courtney