Home
Share
Forum
Multiple sclerosis Forum
Living with multiple sclerosis
Do you have a carer? Do you find it helpful?

Back

Patients Multiple sclerosis

Do you have a carer? Do you find it helpful?

137 views
10 times supported
14 comments

JosephineO

Community manager

17/04/2019 at 11:41

Good advisor

Hello everyone,

Just a general question today, do you have a carer? If so, who is it? Has them being your carer changed your relationship?

Please comment below and share :)

All comments

Go to the last comment

JosephineO

Community manager

17/04/2019 at 11:53

Good advisor

What about you?

@bethen‍ @Barrie‍ @Louise35‍ @1eyedjack ‍ @Bailey123‍ @Bagpuss66‍ @Stokey‍ @Clarket55‍ @Kenbon123‍ @trish444‍ @Sk8rGirl‍ @Shaz1968‍ @Laurab123‍ @Ecky61‍ @Felix7‍ @Bilbobags‍ @Wuddy66‍ @Monty124‍ @Swipermonkee‍ @jenny47‍ @Emskij‍ @Lynn49‍ @Sasha11‍ @Jacquiefripp‍ @Tracyfuss‍ @BShields‍ @Blueribbon68‍ @Jojo21‍ @ThePinkLady‍ @Moreland‍ @Fobelets ‍ @stevebriggs‍ @Audreyib‍

See the signature

Josephine, Community Manager

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-04-17 11:53:47

Laurab123

Edited on 19/04/2019 at 12:13

Hi. I don't have a carer as such, but my husband does a lot. He cooks the meals and does jobs around the house that I can't do. I dont need help with washing/showering or dressing. I had to take ill health retirement in November 2017. It's lovely not being tied to an alarm clock but I do miss the social interaction.

See the signature

Lcl

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-04-17 12:09:55

Felix7

17/04/2019 at 16:16

I don't have a carer and I still work nearly 30 hours a week.

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-04-17 16:16:18

Bilbobags

18/04/2019 at 10:05

@JosephineO I don’t have a carer. Still seem able to cope. I don’t cook per se just live on microwaveable/oven meals (ones where I can just leave them for time required, where I don’t need to be there to ensure all ok). I’m ok with that. Relatively active too, have gym/swim session once a week, physio fortnightly, and I can still cycle (which I love, just got an e bike pack for my Brompton, which enables me travel further and easier with the electrical assist!!). All fun

See the signature

JDB

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-04-18 10:05:09

bubblyjubbly

22/04/2019 at 15:42

I have carers in 3x daily AM get me up 1.5 hours, lunch call 30 minutes, and bed call again 30 minutes.

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-04-22 15:42:47

weefeemcdee

19/05/2019 at 18:10

Good advisor

I don't have a carer, although my husband does alot for me. He cooks, drives me places, reminds of things I need to do.

See the signature

Fi x

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-05-19 18:10:02

JosephineO

Community manager

22/05/2019 at 15:10

Good advisor

@Bilbobags @bubblyjubbly @weefeemcdee @Felix7 @Laurab123 Thank you all for sharing :)

@bubblyjubbly‍ do you have a good relationship with your carers?

See the signature

Josephine, Community Manager

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-05-22 15:10:15

Susiek

15/07/2019 at 13:14

Good advisor

I have 2 carers 4 times a day as I have to get hoisted because I can't weight bear hoping to use my sliding board soon we get on really well and have a lot of laughter you have to when you need them

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-07-15 13:14:07

Sk8rGirl

30/07/2019 at 15:56

Good advisor

@Susiek what is a sliding board? I am barely transferring to scooter to get to bathroom. That sound fun. I’d like to try. I have a caregiver 4 hrs a week for showers and light housekeeping. If I want to keep my med insurance, I don’t qualify for more help and I can’t afford self pay. Ugh

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-07-30 15:56:59

Susiek

30/07/2019 at 16:18

Good advisor

A sliding board is made of wood and shaped like a banana I need help to put it under my hips then I can slide from my wheelchair to bed and back again I am waiting to be checked using it at home although I was using it in hospital it makes you feel a bit more in control!! ❤️

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-07-30 16:18:57