Back

Patients Multiple sclerosis

Do you have a carer? Do you find it helpful?

137 views
10 times supported
14 comments

JosephineO

Community manager

17/04/2019 at 11:41

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 44 in the Multiple sclerosis Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

Hello everyone,

Just a general question today, do you have a carer? If so, who is it? Has them being your carer changed your relationship?

Please comment below and share :)

All comments

Go to the last comment

JosephineO

Community manager

17/04/2019 at 11:53

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 44 in the Multiple sclerosis Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

What about you?

@bethen‍ @Barrie‍ @Louise35‍ @1eyedjack ‍ @Bailey123‍ @Bagpuss66‍ @Stokey‍ @Clarket55‍ @Kenbon123‍ @trish444‍ @Sk8rGirl‍ @Shaz1968‍ @Laurab123‍ @Ecky61‍ @Felix7‍ @Bilbobags‍ @Wuddy66‍ @Monty124‍ @Swipermonkee‍ @jenny47‍ @Emskij‍ @Lynn49‍ @Sasha11‍ @Jacquiefripp‍ @Tracyfuss‍ @BShields‍ @Blueribbon68‍ @Jojo21‍ @ThePinkLady‍ @Moreland‍ @Fobelets ‍ @stevebriggs‍ @Audreyib‍

See the signature

Josephine, Community Manager

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-04-17 11:53:47

Laurab123

Edited on 19/04/2019 at 12:13

Laurab123

Last activity on 15/01/2022 at 11:35

Joined in 2018

1 comment posted | 1 in the Multiple sclerosis Forum

Rewards

Committed
Explorer

View profileView Add a friendAdd Write

Hi. I don't have a carer as such, but my husband does a lot. He cooks the meals and does jobs around the house that I can't do. I dont need help with washing/showering or dressing. I had to take ill health retirement in November 2017. It's lovely not being tied to an alarm clock but I do miss the social interaction.

See the signature

Lcl

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-04-17 12:09:55

Felix7

17/04/2019 at 16:16

Felix7

Last activity on 13/11/2021 at 10:01

Joined in 2014

4 comments posted | 4 in the Multiple sclerosis Forum

Rewards

Committed
Explorer

View profileView Add a friendAdd Write

I don't have a carer and I still work nearly 30 hours a week.

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-04-17 16:16:18

Bilbobags

18/04/2019 at 10:05

Bilbobags

Last activity on 24/06/2021 at 09:09

Joined in 2015

5 comments posted | 2 in the Multiple sclerosis Forum

Rewards

Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

@JosephineO I don’t have a carer. Still seem able to cope. I don’t cook per se just live on microwaveable/oven meals (ones where I can just leave them for time required, where I don’t need to be there to ensure all ok). I’m ok with that. Relatively active too, have gym/swim session once a week, physio fortnightly, and I can still cycle (which I love, just got an e bike pack for my Brompton, which enables me travel further and easier with the electrical assist!!). All fun

See the signature

JDB

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-04-18 10:05:09

bubblyjubbly

22/04/2019 at 15:42

bubblyjubbly

Last activity on 10/01/2021 at 13:52

Joined in 2018

1 comment posted | 1 in the Multiple sclerosis Forum

Rewards

Explorer

View profileView Add a friendAdd Write

I have carers in 3x daily AM get me up 1.5 hours, lunch call 30 minutes, and bed call again 30 minutes.

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-04-22 15:42:47

weefeemcdee

19/05/2019 at 18:10

Good advisor

weefeemcdee

Last activity on 27/06/2021 at 06:12

Joined in 2016

17 comments posted | 5 in the Multiple sclerosis Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

I don't have a carer, although my husband does alot for me. He cooks, drives me places, reminds of things I need to do.

See the signature

Fi x

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-05-19 18:10:02

JosephineO

Community manager

22/05/2019 at 15:10

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 44 in the Multiple sclerosis Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

@Bilbobags @bubblyjubbly @weefeemcdee @Felix7 @Laurab123 Thank you all for sharing :)

@bubblyjubbly‍ do you have a good relationship with your carers?

See the signature

Josephine, Community Manager

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-05-22 15:10:15

Susiek

15/07/2019 at 13:14

Good advisor

Susiek

Last activity on 10/02/2025 at 08:31

Joined in 2018

18 comments posted | 14 in the Multiple sclerosis Forum

Rewards

Good Advisor
Contributor
Committed
Explorer

View profileView Add a friendAdd Write

I have 2 carers 4 times a day as I have to get hoisted because I can't weight bear hoping to use my sliding board soon we get on really well and have a lot of laughter you have to when you need them

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-07-15 13:14:07

Sk8rGirl

30/07/2019 at 15:56

Good advisor

Sk8rGirl

Last activity on 02/01/2021 at 22:59

Joined in 2019

15 comments posted | 5 in the Multiple sclerosis Forum

Rewards

Good Advisor
Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

@Susiek what is a sliding board? I am barely transferring to scooter to get to bathroom. That sound fun. I’d like to try. I have a caregiver 4 hrs a week for showers and light housekeeping. If I want to keep my med insurance, I don’t qualify for more help and I can’t afford self pay. Ugh

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-07-30 15:56:59

Susiek

30/07/2019 at 16:18

Good advisor

Susiek

Last activity on 10/02/2025 at 08:31

Joined in 2018

18 comments posted | 14 in the Multiple sclerosis Forum

Rewards

Good Advisor
Contributor
Committed
Explorer

View profileView Add a friendAdd Write

A sliding board is made of wood and shaped like a banana I need help to put it under my hips then I can slide from my wheelchair to bed and back again I am waiting to be checked using it at home although I was using it in hospital it makes you feel a bit more in control!! ❤️

Do you have a carer? Do you find it helpful? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-carer-2792 2019-07-30 16:18:57

Members are also commenting on...

Articles to discover...

30/05/2025 | Testimonial

Multiple sclerosis: “I’m strict with my rest because without it, I can’t function at all.”

30/05/2025 | Nutrition

Vitamin D and MS: Can supplements of the sunshine vitamin reduce relapse risk?

07/03/2025 | Advice

Staying positive with multiple sclerosis: How can you protect your mental health?

04/10/2024 | Advice

Multiple sclerosis (MS) and sexual dysfunction: everything there is to know!

19/05/2017 | Testimonial

Adjusting to life after being diagnosed with MS

23/03/2018 | News

MS drug hope for secondary-progressive stage

13/06/2016 | News

New treatment can halt aggressive multiple sclerosis

02/10/2018 | Advice

Brain fog: Causes and how to cope

Do you have a carer? Do you find it helpful?

All comments

Give your opinion

Members are also commenting on...

Articles to discover...

Medication fact sheets - patient opinions...