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Patients Multiple sclerosis
Do you have a carer? Do you find it helpful?
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JosephineO
Community managerGood advisor
What about you?
@bethen @Barrie @Louise35 @1eyedjack @Bailey123 @Bagpuss66 @Stokey @Clarket55 @Kenbon123 @trish444 @Sk8rGirl @Shaz1968 @Laurab123 @Ecky61 @Felix7 @Bilbobags @Wuddy66 @Monty124 @Swipermonkee @jenny47 @Emskij @Lynn49 @Sasha11 @Jacquiefripp @Tracyfuss @BShields @Blueribbon68 @Jojo21 @ThePinkLady @Moreland @Fobelets @stevebriggs @Audreyib
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Josephine, Community Manager
Laurab123
Hi. I don't have a carer as such, but my husband does a lot. He cooks the meals and does jobs around the house that I can't do. I dont need help with washing/showering or dressing. I had to take ill health retirement in November 2017. It's lovely not being tied to an alarm clock but I do miss the social interaction.
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Lcl
Felix7
I don't have a carer and I still work nearly 30 hours a week.
Bilbobags
@JosephineO I don’t have a carer. Still seem able to cope. I don’t cook per se just live on microwaveable/oven meals (ones where I can just leave them for time required, where I don’t need to be there to ensure all ok). I’m ok with that. Relatively active too, have gym/swim session once a week, physio fortnightly, and I can still cycle (which I love, just got an e bike pack for my Brompton, which enables me travel further and easier with the electrical assist!!). All fun
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JDB
bubblyjubbly
I have carers in 3x daily AM get me up 1.5 hours, lunch call 30 minutes, and bed call again 30 minutes.
weefeemcdee
Good advisor
I don't have a carer, although my husband does alot for me. He cooks, drives me places, reminds of things I need to do.
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Fi x
JosephineO
Community managerGood advisor
@Bilbobags @bubblyjubbly @weefeemcdee @Felix7 @Laurab123 Thank you all for sharing :)
@bubblyjubbly do you have a good relationship with your carers?
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Josephine, Community Manager
Susiek
Good advisor
I have 2 carers 4 times a day as I have to get hoisted because I can't weight bear hoping to use my sliding board soon we get on really well and have a lot of laughter you have to when you need them
Sk8rGirl
Good advisor
@Susiek what is a sliding board? I am barely transferring to scooter to get to bathroom. That sound fun. I’d like to try. I have a caregiver 4 hrs a week for showers and light housekeeping. If I want to keep my med insurance, I don’t qualify for more help and I can’t afford self pay. Ugh
Susiek
Good advisor
A sliding board is made of wood and shaped like a banana I need help to put it under my hips then I can slide from my wheelchair to bed and back again I am waiting to be checked using it at home although I was using it in hospital it makes you feel a bit more in control!! ❤️
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JosephineO
Community managerGood advisor
Hello everyone,
Just a general question today, do you have a carer? If so, who is it? Has them being your carer changed your relationship?
Please comment below and share :)