How to stay busy with MS?

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Patients Multiple sclerosis

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Posted on

Hello,

I haven't been working for a while because my MS is flaring up. I'd like to know how you stay busy, what you do all day... I'm very bored!

Thank you

Beginning of the discussion - 07/01/2019

How to stay busy with MS?

• Community manager
Posted on

HI @Pleasance‍,

Thank you for posting :) I am going to tag some members who may be able to give you some tips!

@iian22@HazelRutter@Daisydef@PatriciaGriffin@Helenak@pamelaJewell@Tinker2bells@anne23454@Susiek@Martyn@Bailey123@Queenkay@Madmounty@Nathaliedee1@christine1959@Farmchick@MadDawney@Kathrynhaslam@Juliette@Stokey@Ukg6clb@Willpim@Fallgallinda@Cathlea@Mbowdery@ladymary@Mitchece@jay024‍ 

 

How to stay busy with MS?


Posted on

Hi @Pleasance‍ 

I was diagnosed 32 years ago & I haven't worked for a long time. I live alone and I sometimes feel as though I'm going stir crazy.  Everything I do is on my computer. I play Scrabble every single day & I sometimes play bingo. I don't use social media. I read the news and I read about all sorts  of things. I manage most days but there are days I also feel bored!!!   (There are no animals allowed in my flats).

Many days I feel dead lonely & dead bored!!!

I hope you find some good ideas!

Juliet xxx

How to stay busy with MS?


Posted on

Hi 

for me personally it struck me down out of the blue and taken me 2 years to build up me again. A changed person however I have looked at things differently you can either become consumed by it or try and to identify who you are. If you are bored try writing get s dog or cat have a purpose it’s easy to strike of the things we can’t do but  try thinking what you can do, volunteer give something back get some confidence and you will start to feel better mentally. Embrace the days you feel good and write off the ones you don’t . It all sounds so easy but I know the reality is very different and when you have dark days it’s  awful and you never know what’s going to happen and how it effects you so I’m  trying to crack on. I lost my job and I have a family I had a bad relapse and had to re train my brain. It was horrid and that I can only relate to like having a stroke. You have plenty of things to explore maybe just need to identify them . 

How to stay busy with MS?


Posted on

Hi @Pleasance‍ 

i was diagnosed with MS about 23year ago, after having my son. I didn’t know a lot about MS, so I just forgot about my diagnosis and carried on. Working and having 4 children, I was fine. Then out of the blue it “tapped me on the shoulder” and said “remember me” I’m still here! From then I was signed off work, and had several relapses. Eventually I had to stop working, which is very hard, not doing things I was able to do!! I get a lot of days where I am very frustrated, thinking ‘I used to be able to do that’!  It’s very hard coping with MS, knowing you have it for good. I spend my days on my I-pad, reading a lot, also watching birds in the garden. I do puzzles, not very often as MS affects my right side, As my writings not so good. When I get down, my husband says “it is what it is” doesn’t help but makes me think 🤔 

i hope you can find some activities, and something that will help, look after yourself and take care xxx

Iris - Bailey 123..

How to stay busy with MS?


Posted on

@Juliette @Ukg6clb @Bailey123 Thank you for your suggestions and messages of support. I used to crochet a lot but I find it hard to concentrate on now. It's very difficult adjusting to my new life...it happened over many years but lately it has been worse than ever.

sometimes my neighbour's cat comes meowing by my window and I enjoy that so maybe that could be an option. The cold weather makes it all worse.

Thanks everyone xx

How to stay busy with MS?


Posted on

Hi @Pleasance‍ 

if you can occupy yourself with something, it does make MS a bit easier to cope with! The weather is bad the cold 🥶 and the heat worse 🌞.. 

Take care and look after yourself, you are not alone, just nobody wants to talk about MS!

Iris - Bailey 123 xxx

How to stay busy with MS?


Posted on

@Pleasance‍ My M.S. has also become worse lately; it's become progressive & my walking/mobility have become much worse BUT I've had M.S. for 32 years and I am still walking a little (at the moment).

I manage most of the time but I often feel lonely; that's horrid!

Juliet xxx

How to stay busy with MS?


Posted on

@Bailey123 Yes no one does want to talk about it, it is good to have Carenity because I don't have to leave my house to communicate!

 @Juliette I often feel very lonely too :(

Thank you both for your kind words xoxo

How to stay busy with MS?


Posted on

Hello 

I am lucky as I am still able to get out and about most days, but in days that I am limited I read on my kindle, play scrabble and bingo, chat on social media , I also have a dog who likes to play so I can sit in the chair and play with her , having a pet was a big decision as wasn’t sure how I would cope long term but she is a good companion so I feel like I have company too....it’s hard but my son has moved to my area which means I get to see my grandchildren more regularly than I did..so I am fairly lucky ..although I have company  in that respect , my illness makes me feel lonely as it’s hard to explain to non MS suffers how you feel xx

Loraine 

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