Patients Multiple sclerosis
Topic of the discussion
Posted on 25/05/2020 16:16
Hello everyone, in the past few weeks I've started having sever pain in my legs every morning when I wake up. It makes it very hard to get out of bed. Have any of you had this happen before? Should I be worried? I haven't been able to book in to see my doctor yet, so I'd appreciated any feedback or advice you all may have! Stay safe xx
Beginning of the discussion - 26/05/2020Leg pain upon waking up: do you ever experience it? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/leg-pain-upon-waking-up-does-you-ever-experien-3395
Posted on 26/05/2020 16:50
@ladymary Hello ladymary, thank you for starting this discussion. I'm sorry you're going through that! Let me tag some members who may be able to share their advice or experience with you.
Hello all, how are you doing during this difficult time? Have you ever experienced leg pain in the morning upon waking? Do you have any suggestions or advice for ladymary? Feel free to share below!
@Rolley5 @VickiD @Emma123 @Emma1024 @shunt999 @madsheep71 @Zombieapplebaby @Tilly68 @Bern50 @Meggie333 @182614 @Diva360 @Charlie12345 @Harps10 @Jemgavlaa @Fl33tw00d @thembrough @EmilieH
Posted on 27/05/2020 17:47
@ladymary can you describe what the pain is like? Is it more like nerve pain or like a spasm pain? I deal with quite a bit of neuropathic pain, could it be that?
Posted on 02/06/2020 12:10
@ladymary Most nights leg/foot/ankle pain usually wake me up. I explained this to my MS Nurse and she suggested as I use baclofen for muscle spasms/spasticity 30-40 mg a day, and baclofen having only being effective for approximately 4 hrs, this may be the reason? She therefore suggested that I have this available, on my bedside table if/when needed. To be honest, although my usual sleep pattern is almost always "disturbed" due to pain/spasms, try to re-position/stretch etc and return to sleep asap which usually works. On the horrible nights that the pain/spasms become intolerable - have to get up, usually use 12-14 ml of Oramorph and although it usually takes almost 1 hr to actually become effective, have found this to be my only viable solution. Again, most mornings I feel like my entire body has been "run over by a steam roller" and it usually takes me 2-3 hrs before I can actually "function", think this is simply due to my particular MS. I try not to go to bed until I'm too exhausted to "function", (although this happens on various occasions throughout the day/night), on the premise that I will most quickly fall asleep (and this works for myself) but really think everyone (and their MS) are so unique, need to find what works best for yourselves. I also struggle getting in and out of bed but how much this is due to 1-being 69, 2-being "vertically challenged" or 3-my ******** MS, anything is possible (ha-ha). Keeping "everything" crossed that your recent situation improves asap and wishing everyone here, stay safe, well and as happy as possible - NONE of us are alone; we're all in this together x