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Ehlers-Danlos Syndrome: What's your story?

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Ehlers-Danlos Syndrome: What's your story?

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Courtney_J

Community manager

27/08/2020 at 12:45

Good advisor

Hello members,

I thought I'd create this discussion so that our members living with Ehlers-Danlos can get to know one another better. emoticon cute

So, what's your Ehlers-Danlos story? When and how were you diagnosed? Which type do you have? (Did you know that there are 13 subtypes of EDS?!) How does it affect you in your daily life? Have you tried any medications or treatments for it?
@Linzi1518‍ @Pebblesangel‍ @AishahB135‍ @MeganLeanne‍ @dickymint‍ @Newnsie‍ @Charley13‍ @erikafrances‍ @MegJoH‍ @Twyfordtangle‍ @Alysondavis1‍ @Charlott3‍ @Tash0201‍ @Abbie94‍ @katiemoomood‍ @CyberDezz‍ @Greenie3 ‍ @Sammicatx ‍

Feel free to share your story, experiences and any advice you may have for others with EDS!

Take care,
Courtney

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Lisanna

04/09/2020 at 17:52

Hello,

I was diagnosed more than 10 years ago now. I'm 62 years old and I should be retiring in the next few years. I've been fortunate to be able to work with flexible hours, but I did have to take a few months of long-term sick leave at one point because of the fatigue and pain. For the last two years I've been doing much better because for me it's cyclical disease! There are bad times and good times!!! Take care everyone! xx

Ehlers-Danlos Syndrome: What's your story? https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/ehlersdanlos-syndrome-whats-your-story-3719 2020-09-04 17:52:10

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