- Muscles / Skeleton / Joints Forum
- Living with diseases affecting muscles, joints and-or skeleton
- Ehlers-Danlos Syndrome: What's your story?
Patients Muscles / Skeleton / Joints
Ehlers-Danlos Syndrome: What's your story?
- 40 views
- 0 support
- 1 comment
I thought I'd create this discussion so that our members living with Ehlers-Danlos can get to know one another better.
So, what's your Ehlers-Danlos story? When and how were you diagnosed? Which type do you have? (Did you know that there are 13 subtypes of EDS?!) How does it affect you in your daily life? Have you tried any medications or treatments for it?
@Linzi1518 @Pebblesangel @AishahB135 @MeganLeanne @dickymint @Newnsie @Charley13 @erikafrances @MegJoH @Twyfordtangle @Alysondavis1 @Charlott3 @Tash0201 @Abbie94 @katiemoomood @CyberDezz @Greenie3 @Sammicatx
Feel free to share your story, experiences and any advice you may have for others with EDS!
I was diagnosed more than 10 years ago now. I'm 62 years old and I should be retiring in the next few years. I've been fortunate to be able to work with flexible hours, but I did have to take a few months of long-term sick leave at one point because of the fatigue and pain. For the last two years I've been doing much better because for me it's cyclical disease! There are bad times and good times!!! Take care everyone! xx
Give your opinion
Members are also commenting on...
Articles to discover...
06/02/2019 | Advice
02/12/2023 | Advice
30/11/2023 | Advice
25/11/2023 | Advice
12/11/2023 | News
11/11/2023 | Advice
05/11/2023 | Advice
You wish to be notified of new comments
Your subscription has been taken into account