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- Ehlers-Danlos Syndrome: What's your story?
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Ehlers-Danlos Syndrome: What's your story?
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Lisanna
Hello,
I was diagnosed more than 10 years ago now. I'm 62 years old and I should be retiring in the next few years. I've been fortunate to be able to work with flexible hours, but I did have to take a few months of long-term sick leave at one point because of the fatigue and pain. For the last two years I've been doing much better because for me it's cyclical disease! There are bad times and good times!!! Take care everyone! xx
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Courtney_J
Community managerGood advisor
Hello members,
I thought I'd create this discussion so that our members living with Ehlers-Danlos can get to know one another better.
So, what's your Ehlers-Danlos story? When and how were you diagnosed? Which type do you have? (Did you know that there are 13 subtypes of EDS?!) How does it affect you in your daily life? Have you tried any medications or treatments for it?
@Linzi1518 @Pebblesangel @AishahB135 @MeganLeanne @dickymint @Newnsie @Charley13 @erikafrances @MegJoH @Twyfordtangle @Alysondavis1 @Charlott3 @Tash0201 @Abbie94 @katiemoomood @CyberDezz @Greenie3 @Sammicatx
Feel free to share your story, experiences and any advice you may have for others with EDS!
Take care,
Courtney